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Support Group

Posted Oct 22 2008 4:53pm
So yesterday I went to my first support group meeting. it was the first meeting of the group. When I first got there I felt a little weird. The group is mostly older than me, I am unusually young for so many and such aggressive meningiomas, and most of their stories are way worse than mine. Three of the members have/had brain tumors that were secondary, metastasized from other organs, cancerous. One other member had non cancerous tumor, though I don't remember a mention of what type. We started by sharing out stories. This always gets to me, my voice got a little shaky at first, but I did OK. The group seems very nice, we are only meeting once a month so I won't see them again until second week of December, although they all said they would come visit me in the hospital when I have my gamma knife procedure. They have all been thru it. It was nice to be surrounded by people who understand what I am going thru.

After the meeting I went to the store to pick up some food and to get some exercise. And when I came home I did ride my bike for a little bit. I was really tired and hadn't ridden my bike for a week so I was only able to do 10 mins. So much for going up to 20 mins this week! Maybe next week.

Later that evening I went to a movie screening with a friend. We saw "Lars And The Real Girl" it was very good. And it was fun hanging out with my friend. Haven't seen her much because she was busy working on "Desperate Housewives" but the show shut down because of the writer's strike so she is out of work, along with over 100 of her fellow crew members. Not to mention all the other hundreds of people out of work because their shows shut down. The show I used to work on shut down. Many of my friends are currently out of work and many others will be losing their jobs within the next month. This strike really sucks. Hopefully it won't go on too much longer. A friend sent me an email she got from her union. The president of IATSE, the union the crew works for (though we all have out different locals) sent a letter to the president of the WGA (writers guild- the ones on strike) The letter talks about an interview that the labor rep for the WGA gave to the Times about the strike saying that he is just enjoying the havoc he has started. The president of IATSE basically tells the WGA that they need to get back to work before irreparable damage is done to the industry. Hopefully now that IATSE is getting involved the WGA will realize that although they have a fair request, refusing to negotiate is not helping and thousands of people are being effected by this strike. thousands of people, not just crew people, but writer's assistants and production assistants, etc... are losing their jobs. No money coming in means no money to spend. All the businesses in LA will be effected. And its happening right before Christmas. This is going to be a tremendous blow to the economy. I just am thankful that I am on disability because there is no work available and unemployment is not enough to live on when you still have student loans and have a bunch of medical bills.

Enough of this rant. I have a lot more to say, but it is not worth it.

I have a little bit of a headache today, or at least I did earlier. I had one last night too. I think I didn't drink enough water yesterday. Its weird how well I know my body now, I can tell when something is wrong. I am really tired today. Not enough sleep last night. I don't sleep very well. I have a Tempurpedic bed but I keep waking up in the middle of the night on my stomach and my arms or hands have fallen asleep. That is why I don't sleep too well. I keep waking up the middle of the night. I try to sleep on my side, but I keep waking up on my stomach. They told me when I bought the bed that it wasn't good for stomach sleepers, but I didn't listen. It is a really comfortable bed. I just wish I could find a way to stay asleep. I knew I should have gotten a sleep number bed.

You know how every cause has a rubber bracelet now. Well yesterday at the support group meeting we talked about getting one for the group, which got me thinking. I went online and found several websites that let you design your own bracelet. I decided that I don't know many people who actually wear the bracelets and I saw a few websites that offered key chains. Not the ones that look like ribbons. They are bracelets that are made into key chains and you can still customize them. So I ordered a bunch. All gray, because that is the "awareness" color for brain tumors and they all say "Save Tumor Girl's Brain" with a smiley face. now they don't actually say Tumor Girl, but I am keeping this post anonymous, because of all the people I have worked with, and the shows I have worked on and I have signed many a confidentiality clause. If no names are mentioned no harm caused. There was only one name mentioned in my posts and that was my neck rub guy, just so he would know I was thankful. Anyway, I figure I will give the key chains to my friends and family. I thought it would be cool Christmas gift idea. And key chains will be easier to get people to use and show their support then the bracelets.

I think I am going to try to get some exercise now.

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