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Quick Update

Posted Feb 21 2009 11:39pm
Thanks for all the lovely comments and text messages. It is wonderful to know how much suport we have. William is doing really well and is out of intensive care!! He is such a little fighter. He is still in a lot of pain but is nodding and shaking his head and saying the odd word here and there. He is sleeping most of the time but we have had a Thomas story and he has snoozed through a couple of videos. I will tell the whole story but I know people are anxious for the latest news for now.

Wills is taking his nystatin medicine orally and loving how it tastes!! It is the first thing he has taken in his mouth for 3 years!!! I tried to put up some pictures but blogspot is not behaving. I will add them when I can.

Paul and I had no sleep on Wednesday and only had a chair to snooze on yesterday so we are pretty tired. I am going to sleep pretty soon. There are no cubices on the ward until because they have done loads of transplants lately. For the weekend, Wills and I have a 3 bed HDU unit to ourselves. We should get a cubicle early next week but William is in isolation so we will have to be by ourselves in any case.

From tomorrow, I will start updating and telling the story from the beginning. Our call came at an absolutely crazy time when a lot was happening to Wills so there is quite a story to tell.
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