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NEW Resource for Caregivers

Posted Apr 06 2010 8:39am


— “Caring with Courage and Compassion: Notes of Inspiration, Loneliness, Connection, and Love from a Parkinson’s Caregiver” now available for purchase –

MCLEAN, VIRGINIA; March 22, 2010 – The Parkinson Foundation of the National Capital Area (PFNCA) announces the release of a new book, Caring with Courage and Compassion, written by Susan Hamburger, who spent nearly thirty years caring for her husband, Stanford, who had Parkinson’s Disease.  The book covers the Hamburgers’ life with Parkinson’s from Stanford’s diagnosis in 1980, until he passed away in August 2008.

More than 1.5 million Americans have Parkinson’s Disease, a chronic, progressive neurological disease for which there is no cure.  It is estimated that 60,000 Americans are newly diagnosed with Parkinson’s every year.

“When my husband was diagnosed with Parkinson’s in 1980, our lives changed,” said the author, Susan Hamburger.  “There was very little research on Parkinson’s itself, and even less information on how to care for someone with Parkinson’s.   With time and experience, and a lot of love, I wanted to write this book to help others who are now going through what I spent twenty-eight years of my life doing – caring for someone in the true sense of ‘in sickness and in health’.”

“Giving support and care to someone with Parkinson’s disease can be one of the most challenging, yet fulfilling, roles a person can take on,” said Lou Nistler, PFNCA executive director.  “In writing this book, Susan offers her own shoulder for others to lean on.  She details the ups and downs a caregiver feels, shares her own personal experiences, and offers sound advice for those who care for someone with a debilitating illness or disability.  This book is not just for those who care for someone with Parkinson’s.  Anyone who offers support and care for another person can learn from Susan’s experiences,” Nistler added.

Hamburger shares her experiences and offers advice in ten chapters:

1.     Who we are as caregivers

2.     How do I do this?

3.     Adjusting to changes

4.     Stress and anger

5.     Communication

6.     Attitude is everything

7.     Caring for the caregiver

8.     Self-care is not a luxury

9.     Some fine points of caregiving

10. Dealing with loss

The costs $15 and is available on, as well as by calling the PFNCA at (703) 287-8729.   Copies of the book are also available through the  National Parkinson Foundation and the  American Parkinson Disease Association web sites.

For more information about the book, Parkinson’s Disease, or the Parkinson Foundation of the National Capital Area, go to .

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The Parkinson Foundation of the National Capital Area (PFNCA), a 501(c)(3) nonprofit, provides services and support for people in the Washington, DC, metropolitan area with Parkinson’s disease, strives to raise awareness about the disease and the search for a cure, and supports research into the cause and cure for Parkinson’s disease.  Maintaining an extensive support-groups network throughout the region for patients and caregivers, as well as weekly therapeutic exercise programs in Arlington, Fairfax, and Bethesda, the Foundation also publishes Parkinson Update, a quarterly newsletter for the community, which features articles on new treatments, coping with the disease, and promising research advances.

Filed under: Being Hopeful , Caregiver Resources , Caregivers , Parkinson's Disease , Parkinson's Disease Foundation (PDF) Tagged: American Parkinson Disease Association , Parkinson Foundation , Parkinson Foundation of the National Capital Area , Parkinson's Caregivers
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