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Living in A Box - the photos

Posted Feb 21 2009 11:39pm



Here is William making his box home and a couple of other shots of him being entertained in his room. We are getting into a routine with the isolation now with school coming in twice a day and our wonderful Sue coming in from home a couple of times a week. William was due to have his line out today but it was postponed to tomorrow because the emergency theatre slot ran out. His new line will go in on Tuesday and he will begin the antibiotic line locks in the hope it will last more than a few weeks this time. He is still on 24 hour TPN and extra fluids so we will wait and see if things settle when the line is out, otherwise he will need his home TPN re-formulating and will end up staying in hospital a little longer. We can't wait to get home and see Hope and Ellie.
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