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Just a few causes from a few of my FB friends

Posted Jan 12 2010 2:00am
Monica Ball Request to all my hydro peeps: I want to know what caused your hydro or family members hydro...

Tyanna Thomas Diagnosed @ 28. Arachnoid cyst.
10 hours ago ·

Sandi Hoitsma I was born with it but my mom noticed it one nite @ dinner when I was 2 months old.
10 hours ago ·

Alicia Harper Although the exact cause is unknown, a large portion of Braydens brain was destroyed, likely by stroke, in the first trimester. His brain is replaced my sacs of cerebrospinal fluid...you can read more about him at his CB~ http://www.caringbridge.org/visit/braydenharper or learn more about his condition or fin resources/inspiration for parents of children facing terminal prognosis at my personal blog~ http://hydranjourney.blogspot.com
10 hours ago ·

Dave Callan mine arrested when i was a baby but restarted when i got a severe knock to the head


Monica J. Foster I was born with spina bifida which contributed to my hydrocephalus as a baby.


Alicia Harper But I'm also happy to say that after having a VP shunt placed at 1month of age, he has progressed greatly and is doing amazing things despite the grim prognosis!! Nothing short of a miracle ♥

Monica Ball Monica the other conditions related to hydro reall puzzle my brain...Dave I have heard of several people that develope hydro after a head trama
9 hours ago ·

Monica Ball Alicia I was not suppose to walk or be able to correct the damage to my eyes...Doctors don't know it all
9 hours ago ·

Sandi Hoitsma I think we all are miracles!!! I remind myself when things go wrong sometimes that I am lucky to be alive b/c of a shunt :) We all should tell our stories more often.
9 hours ago ·

Dave Callan my parents were told i wouldnt talk read or write
9 hours ago ·

Monica Ball I'm hoping to repost this on my blog... for myself and to show others...this could be you. Just because I look fine does not mean we are fine
9 hours ago ·

Alicia Harper I absolutely agree Sandi, then babies or families facing similar diagnosis would not get only the doom and gloom end of story, but hear the mNy stories of hope and inspiration too!
9 hours ago ·

Sandi Hoitsma that's true monica. Dave, we are all miracles and I am glad you should them otherwise what you can do.
9 hours ago ·

Monica Ball Many babies would be given the choice of life
9 hours ago ·

Denise Cameron Birth defect. SPINA BIFIDA.
9 hours ago ·

Sandi Hoitsma I agree alicia, families need to hear that their babies will live a long life with a shunt and technology that we have now that's out there.
9 hours ago ·

Sara-Lynn Metschke My hydro was caused by something unknown!...
9 hours ago ·

Monica Ball Sara...at birthor as an adult?
9 hours ago ·

Madalyn Russek Hey Monica! It is guessed that my hydro was caused by my aqueductal stenosis. Otherwise it is unknown
9 hours ago ·

Keyt Harrington I was probably born with it, but it wasn't discovered til i was 5 when i had cerebral meningitis. but had loads of other problems from seizures to blindness from day of birth. its rare to have meningitis once, ive had it 4 times!
9 hours ago ·

Monica Ball Keyt...% years with hydro untreated that is scary
9 hours ago ·

Keyt Harrington yup and i died several times too. but, this was the early 70's when no one knew what they were looking at still
9 hours ago ·

Madalyn Russek I completely agree with Monica Keyt! I can understand how hard blindness would be at such a young age
9 hours ago ·

Keyt Harrington No one knew i was blind til i started walking into walls. Fortunately (and unfortunately) my mom was an RN and knew something was up. After the shunt, i was just legally blind, but it was accidentally cured when i was 18
9 hours ago ·

Monica Ball WOW!!!
9 hours ago ·

Keyt Harrington look at all these hydro-related peeps. how'd you get em all monica, i only have a few hahaha
9 hours ago ·

Hope Elizabeth Welker Far's I know, it's congenital acqueductal stenosis, possibly arrested but "awakened" by my high forceps delivery (which also resulted in a subdural hematoma and, more than likely, my epi).
9 hours ago ·

Madalyn Russek Keyt THATS AMAZING! So what was it like being blind then being able to see ?
9 hours ago ·

Monica Ball Keyt number one I started searching online support groups where I found Liz (Hope) who helped me find others... so much of my life I did not know and now I want to know everything...
Liz I was wondering where you were at...
I just wish I hasd half this many following my blog...but how ever I get my message out I am happy


Keyt there are 200 others here on facebook that have not spoke4 up yet
9 hours ago ·

Hope Elizabeth Welker LOL! Busy sending my book to my FB buddies! :D
9 hours ago ·

Monica Ball Madalyn I'm wondering the samething...
9 hours ago ·

Keyt Harrington Well, I'll never forget the day my vision was normal. I could see light and dark and shapes, but nothing else. Both of my eyes crossed into my nose and i got teased all the time, so an eye doc who specialized in treating kids with neuro deficiencies just cut the nerve to one eye so it would go back to "normal". it was an outpatient surgery. Surgery...
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was done, then we went to a hotel room and i took a nap. When I woke up, i could see the picture on the wall and screamed for my mom. I described it and she thought i was joking (my dad and I used to play tricks on her all the time) and thought my dad had told me what the picture looked like til I began describing other stuff on the walls. We both just cried for hours. It took me a while to get used to not needing help and i got bad headaches from the colors for a while.
9 hours ago ·

Monica Ball Go Hope!!!! Great job!!!
9 hours ago ·

Hope Elizabeth Welker It's mushy and sad as hell, but anyone who's interested, just holler. :)
9 hours ago ·

Monica Ball I am!!! you know I am!!!
9 hours ago ·

Hope Elizabeth Welker :D Send me your E, and I'll get Part 1 to ya. Gotta feed the husband. :)
9 hours ago ·

Madalyn Russek WOW KEYT !!!! THATS AMAZING!!!!
9 hours ago ·

Keyt Harrington Thanks. I used to consider myself a rarity til i started meeting more people online like on the hyceph-l list or here. Although back when i was a kid it was all much more rare than it is now. I think of all the things i went through and although i wouldnt wish it on anyone, its made me a stronger person in so many ways!!
9 hours ago ·

Monica Ball Keyt...I also had crossed eyes...I had 3 surgeries to fix them...
9 hours ago ·

Debbie Kuminski my hydro is cuz my body produces too much water goes to my brain and stays there so shunt drains it off my brain
9 hours ago ·

Keyt Harrington Monica. I was gonna have both eyes fixed, but he decided just to do one and the other one another time. Turned out the first one was such a miracle the 2nd one wasn't needed
9 hours ago ·

Kathi DeGrand I think Agenesis of the Corpus Callosum....I was just diagnosed w/ ACC this past summer and was reading that the absence of the corpus callosum can cause hydro, so it made sense.
8 hours ago ·

Haylea Lynn Blank I was born premature at 26 weeks. I had a 3rd degree brain bleed, I also discovered when I was 13 years old that I have Dandy-Walker Syndrome (present at birth probably but never told until I was 13) and Agenesis of the Corpus Callosum.
8 hours ago ·

Walter Thomas LIttle Jr Monica mine is congenital. It occurred at birth. Actually it was present at birth and progressed on the next few days. Add to that I was something like six weeks premature and that didn't help matters at all.
8 hours ago ·

Megan M Moore I had an arterio-venous malformation that burst when I was 3 hours old, which caused a stroke. Oddly enough though, my hydro "resolved itself" after 20 or so years, and I've been shunt-free since September 2008. Still waiting to see if it will come back though...
8 hours ago ·

Monica Ball Megan I would not worry enjoy life without a shunt...
8 hours ago ·

Haylea Lynn Blank Hey Megan... I have been living w/o a shunt for 7 years... :) Only a few revisions of the ETV and 2 other procedures b/c of scar tissue and the Dandy-Walker... Occasional Headaches but life is good. :-)
8 hours ago ·

Lynn Dudenhoefer congenital aquaductal stenosis, but not diagnosed until I was 30.
Lynn
7 hours ago ·

Keyt Harrington Wow i recognize some of these names from the hydro list! Ive been a member there forever but dont post much lately. Great to see everyonE. Feel free to add me if you all like i could use more hydro friends like Madalyn =)
7 hours ago ·

Sue Skinner this is fantastc monica, we dont know were my hydro came from i have a blocked third ventricle and n.p hydro which was diagnosed when i was in my late 20s i am 44 now and was shunted 2 yrs ago which caused a major bleed so i also have two burr holes the opposite side of my shunt
about an hour ago ·
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