How Can I Help to Find A Cure for Parkinson’s Disease?
Posted Jun 25 2010 9:06am
In the blog post earlier this month I mentioned how LONG it takes for a medicine or therapy to be approved by the United States Food and Drug Administration. It takes on the average of 15 years for a drug to move from the Discovery/Validation and Pre-Clinical Testing stages to obtain Regulatory approval. Besides the 15 years of worming through these stages to obtain Regulatory approval, there are so many frustrations that a research scientist must face in order to get their study funded.
So, other than opening my wallet to help to fund research, how can I help? YOU CAN HELP by participating in Clinical Research. There are hundreds of studies being conducted right now by scientists who need people with and without Parkinson’s Disease to participate in their studies. The Michael J. Fox Foundation (MJFF) is currently funding 250 active grants to researchers who are studying Parkinson’s Disease.
If you are interested in finding a clinical research study in your area, go to www.PDtrials.org or contact the Parkinson’s Disease Trials organization at 800-801-9484. This group has the listing of drug trials, singing therapy trials, voice therapy trials, etc. and your participation in a trial could lead to advancing drug approval or even a cure.
Currently the MJFF is funding a study with 17 different Parkinson’s research centers across the world to investigate the use of imaging technology and biochemistry to identify the presence and progression of the disease. This fall they will launch their single largest research project to date, the Parkinson’s Progression Markers Initiative (PPMI), a five-year clinical study to identify PD biomarkers.
This study needs non-Parkinson’s Disease people to participate. If you are interested, please contact Christine Hunter at 713-798-3951 in Houston, Texas. Christine is the program administrator and she can help you and your family members determine if you will be eligible to participate in this groundbreaking research.