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Documenting Your Disability

Posted Jul 17 2010 7:48am

When I first applied for disability, I had difficulty documenting how my Parkinson’s Disease symptoms and how the progression of the disease interfered with my ability to work. I hadn’t documented these symptoms in writing. I had to review my medical records in order to accurately provide this documentation.

 

The Parkinson's Action Network (PAN) has come to the rescue and is pleased to announce the Parkinson's Disease Work-Related Disability Assessment Form.  The form is available for download on their web site at: http://www.parkinsonsaction.org/sites/default/files/pdforminteractive_07-07-10.pdf

 

It has been brought to their attention that people with Parkinson's may experience trouble seeking Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) benefits due to inadequate documentation of symptoms in their medical record.  This form may be helpful to Social Security reviewers during the SSDI/SSI application process.  It was created with the hope that it will be used by both clinicians and patients as a way to document and track a person's symptoms with particular focus on the symptoms that are most likely to interfere with one's ability to work.

 

The Parkinson's Disease Work-Related Disability Assessment Form is designed to supplement a patient's medical record and is not a Social Security Administration form or application.

 

PAN, together with the other national Parkinson's organizations, asks for your help in distributing this form.  Distributing the form to people living with Parkinson's, caregivers/carepartners, doctors, support groups, and online communities is essential in assuring that the form makes it into the hands of patients and doctors and ultimately into medical records.  The form can be downloaded, printed, posted on bulletin boards, discussed with doctors or support groups, and posted on-line.  It is free for all to use.

 

PAN thanks Solvay Pharmaceuticals, Inc., now part of Abbott, for their generous support of the creation of this important project.

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