I’m not a fan of bashing anyone….especially doctors. However, I read an article in the New York Times on Monday about “ Doctors Who Mock Their Patients “.This article was revealing especially after reading Dr. Rob’s blog posts about “ Getting Along – Rules for Doctors “. Dr. Rob has also blogged about rules for patients to get along with their doctors.
I fully understand that most doctors (including Dr. Rob) are people who have family, financial, professional and personal pressures – just like the rest of us. But after reading the article about the doctors who mock their patients, I’m a little more skeptical of my own relationships with my doctors. And ESPECIALLY after seeing the “PD guru in Houston”, being blown off by him, and having him label me as a “head case”, I think you can understand my skepticism.
I don’t want to bash doctors. But I don’t want them to treat me as an object for scorn, mistrust or as a difficult patient. Having a chronic disease means that I do have serious concerns. Having Parkinson’s Disease means that I have a LOT of questions each time I visit. Perhaps that is difficult? I don’t know. But in this age of advanced technology, I have access to numerous resources that inform me, make me THINK, and also make me question the treatments, research and attitudes of my health care professionals.
I started this blog because I was searching for information about Parkinson’s Disease, and I found a lot of conflicting, difficult to interpret information.
Image via Wikipedia
As a former librarian I thought it was disgraceful that the normal person couldn’t decipher the highly technical, medical terminology to understand if any progress was being made in finding a cure for PD. By blogging I also discovered that people around the world felt disconnected and discouraged about their drug treatments, the attitudes of their health care providers, and they longed for some type of connectivity in the Parkinson’s community.
Our health care systems aren’t nearly perfect – not in the United States, England, Germany – anywhere. We have all had unfortunate experiences with physicians who behaved as if they were “little Gods”. PwP want to be treated as people, with respect, dignity, and some patience. We do have questions, and we don’t always understand the terminology our doctors use. Many of us are elderly, hard of hearing, have cognitive impairment in addition to our tremors, imbalance and dyskinesia.
All I’m asking is that doctors practice the Golden Rule. If you want your patients to treat you with respect, dignity and patience – then just do the same with us. Walking in my Parkinson’s shoes is hard enough without me being subjected to your God complex, having to stroke your ego or argue with you about what’s going on in my body.
I’m not bashing doctors here – I’m just pleading for you to do your job humanely.