Health knowledge made personal
Not sure how long this post has been up, but something similar is happening with my wife. She was diagnosed with a glioblastoma seven years ago, she underwent surgery, radiation and chemotherapy (oral) for 3+ years. All was good. Clean MRIs and great reports. She had a seizure two weeks ago and she immediately had an MRI. While there was no noticeable mass, there was 'something going on' in her scan. (a subsequent DOPA/PET scan was inconclusive) The docs said it could be new tumor growth or it could be gliosis (layman's terms: scar tissue from the surgery/radiation/etc.)
She will have another MRI in six weeks. If the scans continue to show this 'something going on' or that 'something' seems to be spreading, they will operate to remove and to get a biopsy sample. So... we're waiting. Please let me know what you found out with your husband. Thanks
I to have a brain tumor Oligoastrocytoma 2/3 found in 1998 had surgery and the tumor doubled its size by year 2002 Had surgery again and then 7 weeks radiation. Did not do chemotherapy because I wanted to have kids. I now have a 6 year old and a 4 month old I have been good for 7 years and now on my last apt. They think my tumor came back or could be radiation damage? So I did a special scan a MRS it tells you if it is tumor growth or radiation damage. I did the test and it was gone not sure why just a little swelling left. My doct thinks it was radiation damage but not sure. I dont know what to do I have another scan in a few months just not sure what to do. I just pray the tumor has not come back I dont think I will be able to handle this for a 3rd time and I have to wonderful kids now. Has this ever happend to any of you regarding the radiation efects. My doct. said it is rare to see radiation efects 7 years out?
thanks.
hi
i just been diagnostic with barain canser or most like tly with a tumoram scareand am alone in this one i would like to know if the test they doif it herts and if i have to be with some one pleaseany one just let me know
thank you
One o f the tests they run is an MRI....and there is no pain whatsoever involved....you just lie down and they do 'scan' (which is just like taking pictures) with a noisy machine. There are also EEGs..and there is no pain to that either. They put about 8 little circles (imagine DOTS cut out of Post-It Notes) on your head. The dots are connected to wires that go to a machine....but you do not feel anything. So really...I can't think of a test they would do, other than maybe a blood test...that you would even feel anything. It will be new to you...but not painful!! :-)
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Posted by crackers
My husband had a brain tumor removed 7 years ago. It was an astrocytoma grade 2/3. He had radiation and chemo. All was well until 2 weeks ago. In the past 2 weeks he has had what seems like 3 seizures. With the first seizure we took him to the Emergency Room. All tests seemed clear including the MRI (with the possible exception of more scar tissue around the site). Can anyone tell me if this has happened to them this many years later. If so, please explain. I also welcome any guesses at other causes to look in to. Thanks.