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Bob DeMarco Patient Expert

Delray Beach, Florida
I am a citizen journalist, writer, investor and caregiver. I am the sole caregiver for my mother; she suffers from Alzheimer's disease. Prior to moving to Delray Beach, Florida to take care of my mother I was CEO of a software development and marketing company based in Reston,... Full Bio
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Dotty is Still With Us, 5:08 AM, Dotty Continues to Amaze Me by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving I will discuss crisis care with Hospice by the Sea today. If I get the assurance that I get to make the veto call on the drugs; and that, the crisis care nurses ... Read on »
Alzheimer's, Hospice Crisis Care by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Hospice Crisis Care is provided by a team of hospice nurses and other team members, in home, for as much as 24 hours a day. By Bob DeMarco Alz ... Read on »
Neuron-nourishing Cells Appear to Retaliate In Alzheimer’s by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving "There must be a secondary process toxifying the amyloid; otherwise the neuron would self-intoxicate before it made a big plaque. The neuron would die first.” ... Read on »
Dotty is Still With Us, 6:24 AM, But Declining by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving I wrote this because I understand that many of you have become invested in this end of life experience along with me. By Bob DeMarco Alzheimer' ... Read on »
Dotty is Still With Us, Telling It Like It Is by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Can there be any greater act than after caring for a person for a very long time -- then, being with them when the end is very close? When the end comes you real ... Read on »
Dotty is Still With Us, Monday 7 AM, Its Very Quiet by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Dotty is not agitated, hallucinating, or "crazy". By Bob DeMarco Alzheimer's Reading Room Dotty is still with us. She is very comfortabl ... Read on »
The Source of My Inspiration to Help Alzheimer’s Patients by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving At times, she really thought she was my sister, and scenes of sibling rivalry were played out. By the time I was 8 or 9, I was clearly her caregiver. No one a ... Read on »
Dotty Still With Us, 9 AM, Sunday, A Difficult Night for Sure by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving I woke up around 1 AM and distinctly heard a change in Dotty's breathing. By Bob DeMarco Alzheimer's Reading Room On Dea ... Read on »
Talking With Dotty by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving I feel that in some way deep down Dotty did understand that I was merely the voice for all of you. By Carole B. Larkin Alzheimer's Reading Room ... Read on »
Dotty Still With Us, 5 AM, Saturday, Detailed Update by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Dotty is not agitated and is not acting crazy. Occasionally, she might call out mom, mom. By Bob DeMarco Alzheimer's Reading Room ... Read on »
Research Provides New Cues on How ApoE4 Affects Alzheimer's Risk by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving The researchers found that the high-risk variant, ApoE4, triggers an inflammatory reaction that weakens the blood-brain barrier, a network of cells and other com ... Read on »
Alzheimer's Gene ApoE4 Causes Brain's Blood Vessels to Leak, Die by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving A team of scientists from the University of Rochester, the University of Southern California, and other institutions found that ApoE4 works through cyclophilin ... Read on »
Dotty Still With Us 9 AM, Some Enchanted Evening by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving As I was rubbing her feet, Dotty's eyes popped open and she gave me that sweet little Dotty smile. By Bob DeMarco Alzheimer's Reading Room ... Read on »
Individuals With Dementia More Likely to Die at Home Than in Nursing Homes by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving The researchers determined that a majority of care for those with dementia, even advanced dementia, is provided by families. The results challenge previous assum ... Read on »
Dotty Still With Us, Hospice Comes Through with an Angel by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Did Hospice send us an Angel? An angel among us? By Bob DeMarco Alzheimer's Reading Room Right after I wrote this morning, we entered into ... Read on »
Dotty is Still With Us, Thursday, 7 AM by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Its a new day, and I continue to deal with the situation. By Bob DeMarco Alzheimer's Reading Room Dotty is resting comfortably. So comfort ... Read on »
Dotty is Still With Us, Wednesday, 4 PM by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving I am now saying this with confidence.  Even though Dotty won't be able to say my name, or might ask me, who are you?, Dotty will know me. By Bob DeMarco ... Read on »
Alzheimer's and Dementia News 139 by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Critics Call Government's Alzheimer's Plan Unrealistic and More By Bob DeMarco Alzheimer's Reading Room Critics Call Government's Alzheimer ... Read on »
MetLife Foundation Recognizes Alzheimer's Researchers with Awards by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving Alzheimer's Reading Room MetLife Foundation today announced the recipients of its 2012 Awards for Medical Research in Alzheimer’s Disease ... Read on »
Obama Administration Presents National Plan to Fight Alzheimer’s Disease by Bob DeMarco Patient Expert Posted in: Blog Posts in Caregiving “This is a national plan—not a federal one, because reducing the burden of Alzheimer’s will require the active engagement of both the public and private sectors. ... Read on »