Actually, it's genetic through his father's side. His aunt who had it passed away 5 or 6 years ago and I'm concerned that my son might have it. I would like to have him tested for it but I can't not remember the name.
I cannot remember the symptons. All I can remember is that her blood cells could not reproduce hence her needing to go to dialysis (sp?) 3 times a week. She had tumors in both kidneys (not canceress as far as I know). When she had surgery, she only had half a kidney after the tumors were removed.
I can't seem to locate his father to find out the name. I don't believe that he has it but I want to have him tested for it, regardless. I hope you can help me.