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The Science of Compassion: Future Directions in End-of-Life and Palliative Care

Posted Jul 15 2011 9:30pm
On August 10 - 12, 2011, the  National Institute of Nursing Research presents The Science of Compassion: Future Directions in End-of-Life and Palliative Care, at the Hyatt Regency in Bethesda, Maryland.  The entire program is free and open to the public.
Overall Summit objectives include:
  • Examine the current status of end-of-life and palliative care research, practice and policy
  • Propose strategies to overcome barriers and ensure scientific and methodological rigor in research
  • Delineate new action items that galvanize progress in this vital area of science
  • Envision and map pathways to ensure a future rich with scientific endeavor and achievements

Here is the agenda

August 10, 2011
7:00 PM  -  9:00 PM   
The Ethics of Science at the End of Life: A Town Hall Discussion
Opening Remarks: Patricia A. Grady
Mistress of Ceremonies: Marie T. Hilliard
Panel Moderator: Susan Dentzer
Panelists: Joseph J. Fins; Nancy Berlinger; Karla FC Holloway

The Summit will kick off with a Town Hall event which will bring together, for the first time, individuals from a variety of scientific and practice backgrounds, members of the public with advanced illness and their caregivers, significant others, and policy makers or those driving the scientific research agenda. Highlights include opening remarks by NINR Director, Patricia A. Grady, an exploration of key issues in end-of-life and palliative care research by invited scientific leaders and an opportunity to engage in a public discussion and interactive dialogue.

August 11, 2011
8:00 AM  -  8:30 AM  
Continental Breakfast

8:00 AM  -  8:30 AM  
Dyad Programs - Meet & Greet
Junior researchers, individuals with life limiting illnesses and caregivers accepted into one of the Dyad Programs will have an opportunity to meet their assigned Mentor at a Meet and Greet breakfast before the Keynote Session.
8:30 AM  -  9:30 AM  
Introduction and Keynote Address
Keynote Speaker: Dr. Ira Byock

9:45 AM  -  11:35 AM
Plenary Session 1: Identifying our Strengths
Dr. Christina Miaskowski
Dr. Randy Curtis
Dr. Pamela Hinds
Dr. Jennifer Temel

Discussant: TBD
11:35 AM  -  1:00 PM
Working Lunch: Parents and Clinicians as Partners in Research
Box lunches will be made available by the Hyatt for $15 and will include a sandwich, chips and cookie. Please select this option if you wish to order a box lunch and stay for this engaging session.

Lunch Speakers
Dianne Gray

Cynda Hylton Rushton PhD,RN, FAAN
Professor, Nursing and Pediatrics
Core Faculty, Berman Institute of Bioethics
Program Director, Harriet Lane Compassionate Care

1:00 PM  -  2:50 PM   
Plenary Session 2: Marshalling our Resources
Dr. Jeff Dusek
Dr. Joan Teno
Dr. Susan Hickman
Dr. Jaime Von Roen

Discussant: Dr. Chris Feudtner
Breakout Sessions
3:15 PM  -  4:45 PM   
Aging and Quality of Life
Moderator: Christine Richie
3:15 PM  -  4:45 PM   
Bio-behavioral Issues in End-of-Life and Palliative Care
Moderator: Dr. Michael Antoni
3:15 PM  -  4:45 PM   
Communication and Advance Care Planning
Moderator: Dr. Deborah Waldrup
3:15 PM  -  4:45 PM   
Complex Comorbidities in End-of-Life and Palliative Care
Moderator: Dr. James Tulsky
3:15 PM  -  4:45 PM   
End-of-Life and Palliative Care and the Caregiver
Moderator: Dr. Deborah McGuire
3:15 PM  -  4:45 PM   
Methodological Issues in End-of-Life and Palliative Care
Moderator: Dr. Amy Abernethy
3:15 PM  -  4:45 PM   
Pain and Symptom Management
Moderator: Dr. Diana Wilkie
3:15 PM  -  4:45 PM   
Pediatrics/Perinatal Issues
Moderator: Dr. Joanne Youngblut
3:15 PM  -  4:45 PM   
Psychosocial, Cultural and Spiritual Aspects of End-of-Life Care
Moderator: Dr. Bronwynne Evans
3:15 PM  -  4:45 PM   
The Era of E: The Use of New Technologies in EOLPC
Moderator: Dr. Michael Green
5:00 PM  -  7:00 PM   
Evening Reception and Poster Session
Poster abstracts addressing a variety of themes in end-of-life and palliative care research will be presented at a poster session in conjunction with the Summit’s Evening Reception featuring desserts, coffee and dialogue with top researchers in the field.
August 12, 2011
7:30 AM  -  8:00 AM  
Continental Breakfast

8:30 AM  -  11:00 AM
Introduction and Reports from Break-out Groups

11:00 AM  -  11:30 AM          
Lunch (on your own)
Please check this box if you are interested in purchasing a boxed lunch from the Hyatt for $15. This will include a sandwich, chips and cookie.
11:30 AM  -  1:20 PM
Plenary Session 3: Mobilizing for the Future
Dr. Amy Abernethy
Dr. Marie Bakitas
Dr. Richard Payne
Dr. Jean Kutner
Discussant: June Lunney
1:20 PM  -  2:00 PM   
Closing Session: Keynote and Closing Remarks
Closing Keynote Speaker: Dr. Randy Curtis

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