In 2002 I was diagnosed with Lupus SLE. I was always tired could sleep for days, my body hurt everywhere. I was put on steriods but after resereach found that they do so much harm to your body even though they help with the pain and weened myself off of them with the docs help of course.
Ive been through a few surgeries since and now have developed a burning sensation in my back terriable pain across my shoulders and in my neck and jaw. I can not hardly turn my head to the left anymore. I was hospitalized for the stiffness and tingling in my arms the palms of my hands are numb everymorning sometimes I can barely turn over.
I thought it could be my weight so I lost over 50 pounds this year and it seems worse!
I recently changed jobs and drive 1 hour and 15 min to work each way. Could this be part of my problem? My doctor recently did some blood work and my ANA test can back neg? Has anyone ever heard of this happening with lupus? Now I'm going for a EMG and cat scan of my back I just dont seem to be getting any answers! Please Help!