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Update: Alex Spourdalakis

Posted Mar 01 2013 12:00am

Update memo

Today, Alex and his mom, Dorothy, will be leaving Loyola hospital in Chicago, heading to an undisclosed location out of state where he will receive appropriate medical attention. Age of Autism Contributing Editor Lisa Goes offers this update from Dorothy Spourdalakis:

To all the people who cared enough to get involved:

 

Alex and I would like to thank everyone for their prayers, good thoughts and cards with beautiful drawings and best wishes. I would especially like to thank the one person who became my son Alex's silent benefactor. She is truly my son's "angel".

It is during times like this we as a family realize our full potential. We know no one will help us unless we help ourselves. The continued abuse, medical neglect, discrimination and ignorance have to stop. Vaccines have maimed too many already and there are many more to come. The CDC's latest stats confirm that. We are not going away, nor are we giving up. My son Alex is just one of millions of children and adults who no longer will be silenced.

We as a group have been deceived and lied to long enough. Our children have paid and are continuing to pay the ultimate price because of greed. The health care system has failed terribly. It is our responsibility to continue to bring about change.

Please continue to follow Alex on his journey toward better health. Allow us to be a part of your lives. Our strength will continue to come from everyone and anyone who would like to continue with us. Alex will hopefully get the medical testing he needs but was denied until now. So much needs to happen in order for us ensure his recovery and I still need so much help!  Please continue to follow my team of helpers for updates and fundraising efforts.  I cannot tell you how much I appreciate and value every single one of you who have gotten us to this place.  Thank God for the internet and facebook!  

I could not have done this without the help of Mark Hellner of Center for Disability & Elder Law and Agatha, Alex's godmother and Michael my friend and Alex's respite worker.

I am grateful for Age of Autism, its editors and especially Lisa Joyce Goes. I am also grateful to Autism is Medical (AIM) especially Jill Rubolino and Jeanna Reed and Dawn. None of this would have been possible without them. There are others who have asked not to be identified. They also are heroes in their quiet way. 

Lastly, and most importantly, I am proud of my son, Alex who has endured the unimaginable. I am proud to be his mother.

Love and Respect, Dorothy

 

Posted by Age of Autism at March 23, 2013 at 9:41 AM in LJ Goes Permalink

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