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The Illusion of Progress: Talk Show Autism

Posted Feb 01 2011 12:00am

TalkShow2 By L.J. Goes

In late January I received an email asking me if I would have any interest in appearing on the Dr. Oz show that aired last week.  Of course I jumped at the chance to tell Noah’s story and a phone call between me and one of their producers was arranged.  Our conversation went something like this.

“So, tell me about your son.  What’s his name?” 

I explained his name is Noah, he’s  4 and he has two neurotypical, “normal” siblings, a sister, Madeleiene, age 6 and a brother Liam, age 2.  

“So you think that maybe your son’s autism was caused by vaccines?” 

Right to it. Let's do this. I launched. “I do not think that all cases of autism are caused by vaccines.  However, Noah’s symptoms were clearly exacerbated by repeat vaccination.  He showed signs of a reaction to the Hepatitis B vaccination which he received when he was only hours old. He was jaundiced for several weeks afterward.  His pediatrician kept saying there was no cause for alarm, just extra bilirubin production, probably.   Noah never cried.  He grunted.  Of course, these should have been signs to us but we were so ignorant at the time.

We continued to vaccinate throughout his entire first year of life, according to the schedule.  I am not one of those moms who is going to tell you he was stringing together words, playing with his sister and tossing a ball.  He was pulling himself up, he could sit on his own and he would seek me out.  After his 12 month well-baby visit he spiked a very high fever and became uncharacteristically lethargic.  We rushed him to the emergency room.  The doctor tested him for strep and the test came back negative.  He told us it was the vaccinations.  Go home and alternate Tylenol and Motrin and he’ll be fine.  We did what we were told, yet once again. 

From that point forward he would not eat.  I realize how dramatic that sounds, but it’s true.  The few  foods we could actually get him to try he would reflexively spit out.   He licked walls. Between his second and third year of life he did not gain a single pound, despite the valiant efforts of our nutritionist.  He had yellow diarrhea that caused him to have red raised bumps on any area of his skin that it touched.  This condition lasted for two years and still resurfaces.  He has reoccurring bouts of eczema that cover his body.  Somehow our pediatrician could not connect the dots, something we were finally starting to do.  She blamed the diarrhea on the food aversion.  When I asked her what was causing the food aversion she told me, “Different kids develop at different rates.”  Finally, we sought the help of a physician who listened.  We discovered that Noah had sustained significant damage to his neurological functioning due to aluminum toxicity.  His immune system cannot stop producing antibodies for varicella.  He has the measles in his intestines.  He’s a very sick little boy."

“Oh my God.” She said.  “Do you think he’ll get better?” She seemed genuinely concerned.
“You know, it’s really hard to tell. His liver does not function properly.  His proprioceptive, nervous and vestibular systems have been severely impacted by the neurological damage.  His immune dysfunction is what concerns me the most. I began work on a documentary about this last year so I've interviewed several parents.  I know of kids on the cusp of recovery and I know children in institutions. I don’t know what the future holds for Noah.  We are getting him all the treatment we possibly can to give him the greatest chance of recovery.  We read the science that has been suppressed.  We read the science that has received critical acclaim. We make decisions on his behalf based on our own research and a collaborative effort of several medical professionals.  We question everything.” 

The producer wrote down my blog address and asked me about the stalled documentary.  Then she turned to the topic of the Good Doctor. My first reaction was to run off the litany of false allegations and then present the facts in his defense, but I knew that would take too long. 
So instead I responded, “Let’s pretend for just a moment that Andrew Wakefield does not exist.  For the sake of argument, let’s pretend Jenny McCarthy doesn’t exist.  Thousands upon thousands, now millions of families in the US, the UK, and around the world have had the same experience I just described to you.  I know because I make it my business to talk to them.  Our observations have been ignored, our children’s physical illness and neurological damage denied.

The thing is, lots of these children respond favorably to vaccine injury protocol if the parents have access to resources and gobs of money.  Most parents don’t.  I know parents bankrupting themselves. Noah is making progress because some of the treatments he has received have worked.  There is no perfect cure for autism like there is no perfect cure for cancer.  Some forms of cancer have a clear cause--smoking.  Some forms of autism have a clear cause--the widely accepted practice of untested, excessive vaccination.  We don’t have toxic toy court or car emissions court.  We do however,  have a vaccine court that has paid out billions to vaccine injured families.”

It seemed that the reality of vaccine court was news to her. I continued.



“When all this went down I started to do my own research. I discovered no studies existed on the multiple vaccinations Noah received.  The CDC endorses a program they have never even studied.  When you watch an exasperated physician on T.V. admonishing a concerned American public by insisting “the studies have been done,” what he is saying is that hundreds of myopic studies on particular vaccines have indeed been conducted.  They are available for your perusal at pubmed (http://www.ncbi.nlm.nih.gov/pubmed/. ) Not one study among them has examines the effects of Hepatitis B, diphtheria, tetanus, Pertussis, Hib b, pneumococcal, influenza, inactivated polio virus, measles, mumps, rubella, varicella, Hepatitis A, and all the accompanying adjuvants in those vaccines, when they are injected into the developing immune system of a toddler.  This is the practice of simultaneous multiple vaccination.  Government approved, physician recommended, NEVER tested. Don't you think we need to, at the very least, be able to question why?"

This is where I lost her. 

A fundamental shift occurs within every person who has absorbed this information.  As I am sure most of you reading this know.  You are never the same.   She wasn’t ready. She knew I was telling her the truth.  I imagine this is what many a worker in the nazis' administrative offices rationalized.  " Hmmm, strange. Looks like I just signed off on the paperwork ordering the extermination of an elementary school full of children.  I think my 3rd grade teacher still works there.  Wonder what's for lunch at the commissary today?" 

The producer concluded our conversation by saying, "This is such a political issue, I really want to do a fair show, I really do." It’s not her fault.  It’s Katherine Sebelius’s fault for instructing the “free media” to steer clear of our kind, by sending the false message that we are devoid of a scientific foundation.  I'm just a mom on the front lines, no letters after my name.  No title. No association. Just real life experience. 

As you may have guessed, I didn’t make the cut for this “controversial" show.  Nor did the respected doctors or celebrated authors from our camp. The stoic and strangely disconnected Allison Singer was there to represent.   Desperate, sad, and overwhelmed parents were profiled.   A sensationalized melee ensued.    No one from our movement, a parents’ movement based on intellectual investigation, raw data, scientific truths, an unwavering commitment to the value of human life, and the right to an informed choice, was there to educate.   I would say the Dr. Oz Show was progress had I not watched the testimony of Lynn Redwood before congress on the topic of vaccine safety, back in 2000, after Noah’s diagnosis is 2008!  Her articulate presentation fell on the deaf ears of policy makers more than a decade ago. Solid research, concerned parents, sky-rocketing autism rates?  What has been done?  Nothing.  More shots added to the schedule, more children falling ill, more parents told there is no rhyme or reason to the whole thing, it just "is".

This  hyper-publicized show just involved the general public in the same one-sided debate that has been going on since the early 90’s. More stonewalling, more throwing their arms up in disbelief…we don’t know, we just don’t know!  Well, we know, Dr. Oz.  We know because we do the work, the hours of painstaking research.  We read copious amounts of scientific, medical, and historic literature. We question physician after physician. We travel around the world looking for answers.  We talk to each other.  We compare notes.  We write books and make documentaries.  We hold conferences that physicians, parents, scientists and researchers from all over the world attend.   I am not saying we have all the answers.  I am saying we have the courage to ask the questions.  Next time, allow us to share what we have learned.

LJ Goes is Managing Partner of The Misuta Project, LLC.  An autism media company in search of the truth, in support of those pursuing it.

Posted by Age of Autism at February 25, 2011 at 5:43 AM in Current Affairs Permalink

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