Health knowledge made personal
Autism & Autism Spectrum Community
Join this community!
› Share page:
KFloortime Lite Mama
+ Add Blog to My Feeds
› View Profile
› Send a message
› Write on Whiteboard
More from this Member
Starting today Floortime-Lite
Meeting his Psychologist
Mom and Dad are home
Maybe doing some sensory related things today
» View All
SOOC Saturday - Being Loved Part Two
Posted Aug 15 2009 12:00am
I am listening to a doctor's presentation on the medical treatment of Autism.( considered alternative treatment by the mainstream medical community )
His own son regressed into Autism.
He is describing his son's regression.
"Z stopped using words. We slowly noticed that he talked less and less"
He adds sadly
""For Z, Mama" was the last word to go"
This last bit, breaks my heart and I leave the room filled with pain for the unknown Z, who hung on to the comfort of the word - Mama -for as long as he could.
But Z's mama could not help him. And neither could R's.
This moment- having this feeling - stands out in my mind as signature of my feelings that year.
Sadness, Confusion, Anger, Guilt
Two years later, as I am getting ready to change my Autism car magnet from "Autism Awareness" to this new one, I think about how symbolic it is of the journey I have been on.
In the beginning, Autism advertising and programming filled me with fear, (though I obsessivly watched every program and read every magazine)
Would he love me no more ?
Would my child turn into a stranger?
So hard to believe.
For R even in the midst of a regression - even while losing skills - seemed his own sweet self.
Surely what makes him R, was more than what he could
If the awareness and fear side of the Autism debate, felt not quite right, the neurodiversity movement was not a perfect fit either.
It never felt right to congratulate someone when they find out their child has autism ( though I love autistic people.)
Nor did R ever feel like he was from another planet.
He is so much of me and of DH.
In this confused time, the only thing that made sense was to learn more about Autism.(And indeed, I did this with obsession)
That was the year of Autism Awareness. And so my car said
It was the time of wanting to read every book,every "rescue story" that there was, searching for the magic answer in the black and white.
But even in this time of fear and worry, the love and the sweetness of this child, made me wonder-is my life really so bad?
And slowly I started to dislike the portrayal of ASD children in the media - especially the implication that ASD kids are burdens on society and their parents.
(What a toxic atmosphere that must create especially for the child )
Moreover, R's weight sits lightly in our arms and is precious beyond words.
As more time passed, I have come to realize that
To me its not
about curing Autism
Nor is it
about celebrating Autism
There are many people talking about those things already and they are right in what they believe in.
mother, its about celebrating
"Every child deserves to have his mother's face light up when he walks into the room
" my friend Heather quoted Maya Angelou the other day
When all is said and done, this is what R needs above all else.
No longer in a place of fear, I have stopped looking outside and I have stopped looking at far away tomorrows
I look inside our lives and I look at today
And life is beautiful .
Because someone with Autism loves me
of this story.
Thanks to T for the suggestion after Part One
For more fun with SOOC Saturday or to participate yourself visit Melody at
Post a comment
Write a comment:
My Big Brooklyn Bridge Adventure
An Almost Perfect Saturday...
Love takes courage - Part 11
Memorial Day Weekend Recap (Part 1)
Part two: Weekend recap (Trader Joe’s, homemade pizza, & pancakes)
Part one: Weekend recap (celebrating & Saluda)
Part one: Babymoon in Aruba
Part two: Weekend recap (music on the green & farmers market)
Part one: Weekend recap (Hubby’s return & Ilios Noche)
Part two: Weekend recap (baby stuff galore!)
About Health Mavens
Complications of a cerebellar stroke
famous athletes with adhd
celebrities with adhd
online activities for autism
pictures of measles virus
prognosis of trisomy 13
jett travolta autism
Video Health Stories
Advertise With Us
See all the
latest blog posts.
Salmonella Nutrition Bars
Children Staph Infection
How to Reduce LDL
Life Expectancy Emphysema
Itchy Swollen Eyelids
Bone Density Medications
Causes of Swelling
Pregnancy Brown Discharge
Sore Neck Glands
Itchy Rash on Arms
Itchy Throat Cough
Pinched Nerve Neck Symptoms
Burning Sensation During Urination
Blood Clots During Period
Swollen Lymph Node Armpit
Causes of Lump
Causes of Itching
Swollen Lymph Nodes Groin
Signs of Pregnancy Before Missed Period
Causes of Rash
Coughing Up Phlegm
Enlarged Groin Lymph Nodes
Early Pregnancy Brown Discharge
Gillian Barre Syndrome
Sore Throat Body Aches
Symptoms of Swelling
Side Effects of Flu Shot
Find a Counselor
Wellsphere does not provide medical advice, diagnosis or treatment.
See additional information.
Copyright © 2013 Remedy Health Media, LLC. All Rights Reserved.