Researchers track down autism rates across the globe
Posted Apr 08 2011 2:00am
The Simons Foundation blog, SFARI , has always had a good quality of articles. Lately it appears to me that the frequency of articles has increased. One recent article hits a subject that has been a focus of mine for some time: prevalence estimates and how they vary by culture and geography. In Researchers track down autism rates across the globe Virginia Hughes talks to a number of researchers working on expanding autism prevalence studies to more countries. Outside of the US and the UK, autism prevalence studies are somewhat rare. Until fairly recently, prevalence estimates outside of the US and Europe were basically nonexistent.
Ms. Hughes starts with this introduction:
In urban areas of South Korea, some families of children with developmental delays will go to great lengths to avoid a diagnosis of chapae, or autism. They think of it as a genetic mark of shame on the entire family, and a major obstacle to all of their children’s chances of finding suitable spouses.
The stigma is so intense that many Korean clinicians intentionally misdiagnose these children with aechak changae, or reactive detachment disorder — social withdrawal that is caused by extreme parental abuse or neglect.
This won’t come as a surprise for those who have read Roy Richard Grinker’sUnstrange Minds, where Prof. Grinker explores how autism is viewed in various parts of the world, including South Korea.
Prof. Grinker is interviewed, as is his collaborator Dr. Young Shin Kim , and Dr. Eric Fombonne.
Autism prevelance work has been performed or is ongoing in Mexico, South Korea, Brazil, India, South Africa and Oman. Since autism isn’t diagnosed through a biological test, variations in culture can have a significant impact on the test methods.
Ms. Hughes notes:
Language and culture may also affect the way this research is carried out. For instance, the Korean language uses an extensive array of suffixes that denote the relationship between the speaker and the subject. South Korean children with autism have trouble using these social markers, but the Western-based standard tests of autism, such as the Autism Diagnostic Observation Schedule (ADOS), don’t test for this.
Similarly, Grinker points out, healthy children from non-Western cultures may display a trait that ADOS counts as a symptom of autism. In South Korea, for example, making eye contact with an adult is not socially appropriate.
“This is why it’s pretty useful to have [anthropologists] who can translate diagnostic instruments that were designed in one culture and used in another,” Grinker says.
Rather than cut and paste the entire article I will point you back to SFARI for the full piece . It is well worth reading.
Hey, I hadn't seen that blog before - but it's awesome. Thanks!
Mention of the possible role of language is fascinating.
“Unlike in English, verbs such as 'think' and 'believe' have different forms in Chinese, depending on the speaker's perception of the statement's accuracy.”
That would make it easier to develop a theory of mind, but maybe harder to question other people's false beliefs.