Two years? Wow, so I've been blogging about Drew for two years today. What started out as just another self-therapy has turned in to something so much more. I wanted a place to keep a diary or journal about Drew and his therapies. And, it came to this. A blog.
I really had no idea what this blog would mean. It has changed me, YOU have changed me. I was definitely changed and humbled by Drew's condition; but I've been so uplifted, validated, and enlightened by all of you! You all have become my best friends. Really! Thank you!! No psychologist could have helped me in the way that you all have.
And, for Drew.... Wow. We have learned so much over the past two years, haven't we? Too much really. We started this spectrum journey with Drew about five months before I started the blog. During that five months, I spent EVERY waking moment researching and frightened. Finally, I got a hold of myself and really started discovering how I could help heal him. And, we are so lucky. He is healing. He's not healed; but he is healing. We are in such a different place than we were 2 years ago. Obviously, there is still much work to do; but folks, it was worth it.
Check out some of what all has happened over the past two years
March 6, 2009
The ABA therapy is "reaching" Drew in ways that we haven't been able to do in almost a year. We look very forward to seeing his recovery progress using all of the above listed interventions.
April 5, 2009
Drew was playing on my bed and went over to a picture of me and Hubby. He pointed to Hubby then me. I copied him. He pushed my hand away and pointed to us again. I kept labeling "mommy" and "daddy". I said, "Where's Daddy?" . He pointed to Daddy!!!! THIS IS BIG. Drew hasn't acknowledged either of us by name in at least nine months. Of course, I also asked, "Where's Mommy?" No response.... go figure.
April 16, 2009
Guess what's baaaaccckkk......."DaDa"!!!!!!!!!!!!!!!!!!!! THREE MONTHS. It has been THREE MONTHS since we've heard double consonants. Yesterday, out of nowhere, as we were leaving therapy, he just burst out with a bunch of syllables. Mainly "gi" and "ga" but "dada" followed suit.
May 29, 2009
Tonight as I lie awake, I "remember" that my child is about to turn two and doesn't flinch if you ask him, "Where's Mommy?" God, my heart aches. My child who is about to turn two does not notice other children, he does not speak, he cries in pain many hours of each day. He didn't see the plane in the sky and say "plane", or run up to our dog with curiousity, or even understand that the little toy train says "choo choo" like the other little boy.
June 15, 2009
Homeopathy has started....
August 1, 2009
Huge Breakthrough!!!Verbal Imitation
August 3, 2009
We are getting so many comments about Drew's progress. His therapists keep going on and on about how well he's doing!!! Today, one of them asked me if we had changed anything. Instead of going into detail and trying to explain it, I just said, "Yes, we do homeopathy. You know, voodoo."
Spontaneous or echo words: (I CANNOT BELIEVE I'M EVEN TYPING THIS PART!) cookie, eat, go, down, cake, head, tummy, Kane, catch, cat, hi. They don't sound exactly like they should but I really don't care at this point. We've also heard him attempt to spontaneously imitate the following: thank you, I love you, swing, sticker, shoes, truck, Nick. He also signs the word "more" appropriately.
October 16, 2009
He called me Momma.
October 29, 2009
Drew has learned so much this month!!! His expressive language is doing great. Still only one word at a time but I'M NOT COMPLAINING!!!!! He's up to 40 words! ...He learned how to feed himself with a fork, finally...He finally taught himself how to ride his little school bus.
December 5, 2009
The first time we cleared the MMR and other 12 month vaccines was pretty tough. However, looking back, it was after that clear that language receptively and expressively seemed to pick back up where it had left off a year ago. Drew has had sensory issues for as long as I can remember. I really hope that when we clear DTaP, maybe some of those sensory issues will resolve.
January 10, 2010
Drew had a terrible hard dry cough out of nowhere. The next day, he had the cough and a fever. The next day......Oh my word. This was probably one of the scariest days of his life.
January 31, 2010
Still having a hard time over here. Drew's been very aggressive for about 6 days now...biting himself, biting us, screaming, throwing himself on the floor. Very frustrating.
February 17, 2010
I just sat and watched (via video monitor) my husband put my son to bed for the last time for a very long time. ...We must make this sacrifice and be a part for the next year or two. We have no other way to pay for Drew's therapy.
March 19, 2010 (Important post regarding sign of kidney infection and oxalate issues)
I realized that Drew was tantrumming at the slightest amount of pee in his diaper. He has NEVER shown any sort of sign that this bothered him. But, time after time over a few days, we got a crazy kid if his diaper was wet. He also started saying, "I want clean" if he was wet. .....Drew ran across the play area, threw himself on the ground accompanied by a loud scream (which was our cue that he needed to or had just peed), ran back over to me and took a huge bite out of my arm.
April 12, 2010
I don't get it! He's mad if he needs to go potty because he doesn't want to peepee in his pants. He's mad if you try to take him potty. He pees fine on the potty. What is the deal? The narrative above happens at least every 30 minutes.
June 2, 2010
I have blamed his behavior on so many things the last few months. If you're a follower, you know this already. But, these out of control tantrums that are so clearly related to the potty were just unbelieveable. Not once has Drew said that it hurts to go potty....then again, I don't know if he could tell me that. Drew CAN and will peepee in the potty. In the beginning, he even pooped in the potty! And, on the REAL toilet. Unfortunately, things spiraled down and everything just got worse. I also noticed his poops were looking bad again. Much more gritty, mushy, just gross. (sorry). Hubby has been very concerned about his gut. I thought that with the extremely healthy food I was giving him, it must be healed. The thing is....if you're giving foods that could potential cause inflammation, you're certainly not going to heal inflammation. And, dear readers, I'm afraid, that is just what has been happening....oxalates.
August 4, 2010 (It should be noted that it was around this time that we started with Rudi Verspoor.)
To be GFCF soy free only (excluding any IgG reactions), to be on more enzymes and probiotics and a multi only, to only need homeopathy for exposures and maintenance, and our big goal is to put Drew in a typical preschool 2 days a week sometime this year.
August 24, 2010
I am proudly announcing that Drew stayed in big boy underwear ALL DAY with no accidents!!!!
October 3, 2010
Transitions. I hate them and so does anyone that spends any amount of time with Drew.
But, I'm here today to tell you about something new. Something brand new. A change in routine. A move to a new location and activity. A day or two or three without excruciating anxiety.
October 18, 2010
In the bathtub, with a pretend phone: "Mommy, I'm going to call Daddy.... Hello? Hi Daddy. I miss you. Now, do you want pears or grapes?"
November 8, 2010
Continued with bananas, strawberries, and avocados- less limited. Constipation. Behavior still up and down with more echoic tantrums (explanation later). Minimum 3 night wakings/week including leg cramps and stomach aches. .....Appointment with Dr. Bradstreet: Sulfate issue/Phenol issue. Must include mag sulfate! I didn't even realize that although I have always been very conscious of high phenolic foods, that switching Drew from mag sulfate to mag chloride would cause a difference where phenols are concerned. Duh. He has always been a reactor to them which is why I do not give highly phenolic foods. Due to his behavior being so good and also being so desperate to try new foods, I let my guard down.
December 3, 2010
We "cleared" the eye anti-biotic (cipro) that was given to him in infancy. The clear lasted much longer than expected. It was a more typical clear including rash, behaviors, green snot, and dry cough. It just seemed to last awhile. It appeared to unlayer yeast for a bit- not unusual for us to see regarding anti-biotics. .....added one ProEPA (we were formally on this product with much success). We immediately saw an increase in language and socialization...within ONE day. ....Questions have been huge this month. Why questions have even come about. What is this, Where is that, How do we- are the most common.
January 5, 2011
I wanted to document more about yesterday (Drew's first day at typical preschool). ...His teacher called to tell me that he was doing FANTASTIC!
January 30, 2011
My recent conclusion is that food has become the final enemy in the battle. It seems like if we could resolve all the food issues, there would be nothing left of autism.
February 14, 2011
He is regulating his emotions. ... he stays with you. He doesn't go to that place where his eyes are glazed over and you know he isn't really there anymore. He's here and he's regulating. It's amazing, really.
February 16, 2011
...the mom asked, "How old is he?" I told her he was three. And, she said, "Wow, he talks REALLY good for three."
And, I'll leave you with a video taken of Drew two days ago. My apologies...I have been sick so my voice sounds seriously ridiculous! And, this video isn't one of Drew's best displays of language; but at least we can see his potential!