If you are interested in how the U.S. government pays for autism research, you should be following the Interagency Autism Coordinating Committee (IACC). They are, well, coordinating the research efforts of the various U.S. government funding agencies.
A big piece of this effort is their “Strategic Plan”. That is a document that outlines what research should be done, and gives a budget for the research projects.
The first version of the Plan is out, but it has to be updated every year. So, here’s your chance to be heard: do you want more money spent on issues concerning adults with autism? Do you want vaccine/autism research to be incorporated into the Plan? Let them know.
We discussed research funding for autism recently. Only about 5% of the total research expenditures in autism are going to understand issues specific to adults. This is under the category “What does the future hold?” Yes, that question does speak to parents of children with autism. For the majority of autistics, the future is now.
It is time to call for more research into issues concerning adults. It’s just wrong to have so little of the funding going into this very important area.
Whatever feedback you may want to give, you can do this through a web based form.
The purpose of this RFI is to solicit input from ASD stakeholders to inform the next update of the Strategic Plan.In the RFI form, there will be an opportunity to provide input oneach section of the IACC Strategic Plan.Please include suggestions regarding missing or underrepresented knowledge areas, new opportunities needed for advancing research and knowledge about ASD, and suggestions for prioritizing research objectives.
The IACC was established as a result of The Combating Autism Act. The act requires that the IACC develop a strategic plan for autism research and update the strategic plan annually. The IACC is composed of both Federal and public members. The first IACC Strategic Plan for ASD Research was developed through an extensive process engaging a wide range of Federal agencies and public stakeholders. The Strategic Plan is organized around six questions that are important for people with ASD and their families:
I.When should I be concerned?
II.How can I understand what is happening?
III.What caused this to happen and can this be prevented?
IV.Which treatments and interventions will help?
V.Where can I turn for services?
VI.What does the future hold?
Please Note:The responsesthat you provide will become part of the public record. You have the option of posting your responses anonymously or you may choose to have your name associated with your response.In your responses, please do not include personally identifiable information that you do not wish to make public.
Attention: RFI on Updating the Strategic Plan for ASD Research Office of Autism Research Coordination Office of the Director National Institute of Mental Health 6001 Executive Boulevard, Room 8235, MSC 9669 Bethesda, MD 20892 -9669 Email:firstname.lastname@example.org