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Dachel Media Review: Funding, Insurance, More Schools

Posted Jan 01 2014 12:00am

Online news By Anne Dachel

Read Anne's commentary and view the links after the jump.Jan 13, 2014, Vancouver (WA) Columbian: Measles cases on rise in U.S

Jan 12, 2014, Sioux City (IA) Journal: LETTER: Physician writes in support of vaccinations for children

Jan 11, 2014, Durham (NC) News Observer: Geri Dawson has devoted a career to autism treatment and research

Jan 11, 2014, TIME Magazine: Autism and alternative medicine: getting real about the benefits and risks

Jan 10, 2014, KIMA-TV Yakima, WA: Funding options for children with autism

Jan 10, 2014, WTAJ-TV Altoona, PA: MRI's, Special Glasses Used to Study Autism

Jan 10, 2014, Medford OR Mail Tribune: Vaccination law 'is really unfair'

Jan 10, 2014, Fox 13, Salt Lake City: Officials break ground on school for those with autism spectrum disorders

Jan 10, 2014, Syracuse Post Standard: Cuomo signs law that will pave the way for health insurance coverage of autism treatment 

Vancouver (WA) Columbian 

Measles infections have risen dramatically, with outbreaks erupting as the highly infectious virus is imported from abroad.

An almost forgotten scourge in some countries, measles has made an astounding comeback in such unexpected parts of the world as Britain, the European continent and Israel, and it is in these regions where American travelers are contracting it.

Worse, more than 98 percent of Americans who've become infected were unvaccinated, according to the Centers for Disease Control and Prevention, which recently voiced concern about the measles upsurge.

"This isn't the failure of a vaccine," said CDC Director Dr. Thomas Frieden. "This is the failure to vaccinate." . . . .

Dr. Pascal Imperato, dean of the School of Public Health at SUNY Downstate Medical Center in Brooklyn, said the measles comeback abroad can be traced to misplaced fears about vaccines and autism.

"There was a controversial report that linked measles and other immunizations to the development of autism," Imperato said of a paper published in the medical journal, The Lancet, 15 years ago. "That in turn gave rise to noncompliance on the part of many parents."

The Lancet retracted the report and the doctor who wrote it was rebuked by British medical authorities. That physician has since moved to the United States.

We don't often hear from Thomas Frieden, head of the CDC, but here he's slamming parents. Haven't heard from reporter Delthia Ricks from Newsday for a while either. She's an old hand at not giving legitimate coverage to this issue. I think I ended up posting 12 comments...links are all working.

Sioux City (IA) Journal 

.  . . According to the CDC, there is no data linking autism to vaccines. The Sioux City Journal failed to mention that an article they referenced in a Jan. 5 story headlined "Vaccination exemptions on the rise in Woodbury County" possibly showing such a link has since been retracted from The Lancet, a British medical journal. The article was deemed fraudulent and the lead author had his medical license revoked in Britain.

Of note, vaccination has likely decreased the rate of autism. Based on mathematical estimates, 16,600 cases of congenital rubella and 1,228 autism spectrum disorders were prevented by rubella vaccination from 2001 through 2010 in the USA. . . .

I was almost left speechless when Kristine Danner, MD made the claim that "vaccination has likely decreased the rate of autism."  I posted my usual comments.  She cites as her source the CDC--the people who run the vaccine program. 

Durham (NC) News Observer

When Geri Dawson was in graduate school for clinical psychology, her first patient had a perplexing disorder that kept him from learning how to relate to others the way most children do. It was 1979, and autism was so rare that her team flew in specialists from across the country. Dawson was so intrigued by the utter lack of knowledge about autism - and heartbroken by the impact it had on her patient's family - that she embarked on a career devoted to studying and treating the disorder. "We had absolutely no idea how a child could come into this world and not be able to form social relationships with other people," she says. "We also had very little to offer this family."

Dawson, 62, became one of the country's foremost autism researchers during a three-decade span in which the disorder grew more frequently diagnosed and better understood. As recently as 1994, only an estimated one in 1,500 U.S. children had been diagnosed with what is now called autism spectrum disorder. Now, one in 88 children has it, according to estimates by the Centers for Disease Control and Prevention. . . .

She spent the past five years as the first chief science officer at Autism Speaks, a national nonprofit devoted to autism research and advocacy, where she oversaw a $25 million research program. As of August, she is leading the development of Duke University's new Center for Autism Diagnosis and Treatment, which will draw experts from various fields to treat autism and related conditions. . . . .

"I thought that I would be an expert in a very rare condition and see a small group of children," she says. Instead, Dawson has seen research into autism explode along with the number of cases. She spent the bulk of her career at the University of Washington, where she directed a team of 100 researchers from different disciplines in addition to conducting her own research and seeing patients. When Dawson's career began, autism was usually not diagnosed until a child was 3 or 4, triggered by a lag in speech development. One of Dawson's first studies compared home videos of autistic and typical children, identifying signs of autism in children as young as 12 months. . . . .

"People with autism have incredible talents and so much to offer, it's great to see the way people have used those talents," she says.

Dr. Dawson has looked on as autism became a nightmare for our children. She's not alarmed or even worried.

She's been quite happy to light the world up in blue and pretend that autism is an acceptable part of childhood.

I posted comments.

TIME

With no approved medications to treat autism, more parents are turning to alternative therapies to help their kids.

A new study published in the Journal of Behavioral and Developmental Pediatrics found that among parents of 600 children between ages two and five with autism (453) and developmental delays (125), 40% reported using homeopathic remedies, mind-body medicine, melatonin and probiotics in an attempt to relieve some of their children's symptoms and even prevent some of the condition's behavioral problems from progressing. . . .

While most of the therapies were relatively harmless, a small number of autistic kids, 4%, were using treatments that the study classified as potentially unsafe or unfounded in science, such as vitamin B-12 injections.

The researchers therefore urge pediatricians to talk to parents about any complementary treatments they may be using on their kids, and educate well-intentioned parents about the potential risks and benefits of the therapies, including how the compounds may interact with other treatments. Last year, a study in Pediatrics found that CAM was also common among kids which other chronic diseases like asthma. . . .

Understanding parents' frustration over the lack of drug-based treatments for autism, experts recommend behavior-based therapies instead; some studies suggested they could lessen some of autism's symptoms and possibly reverse the brain changes that contribute to the developmental condition.

I wouldn't have even responded to this except that it was TIME. What's the message? CAM is dangerous. Talk to your doctor (who's been programed by all the pharma reps sitting in his waiting room). Parents are frustrated because there are no drugs for autism. THERE ARE NO ANSWERS WHEN IT COMES TO AUTISM. And this piece is another example of the media treating autism like a curiosity, not a crisis, telling parents not to expect anything when it comes to answers. Nothing is said about HOW EFFECTIVE CAM CAN BE. The best they said was that the therapies were "relatively harmless."

Yakima, WA

Thousands of families in the Tri-Cities and adjacent valleys are caring for kids on the autism spectrum. While many say the job is rewarding, the journey also has its weighty price tags along the way. Action News learned of a new effort to save your family money.

For Amanda Crawmer and her family, every financial decision is a weighty one, no matter how small. . . . .

We're just fine with autism in Yakima!

Hello Yakima. . . . when are you going to wake up? "Thousands of families in the Tri-Cities and adjacent valleys are caring for kids on the autism spectrum." (And no one can tell us why.)

And no one asks what we're doing for all the adults with autism.

". . . the journey also has its weighty price tags." (Just wait till the taxpayers have to embark on the journey.)

And if I'm reading this right, DDA helped 27 people with autism last year while there are "thousands of families" with affected kids.

Here's one comment that's already posted.......

"Try raising two kids on the spectrum. But I wouldn't change them for anything!"

I can't understand that statement.

We've given up on autism. We're not after answers. ...We want to celebrate autism. We talk about awareness and acceptance. We're satisfied that if our children can't speak, have seizures, GI problems, if normal kids suddenly become autistic---is all fine.

I can't comment here. No one see a problem. I'd sound like some crazy person sounding an alarm over a condition nobody's worried about.

WTAJ TV--Altoona, PA

Studies show differences in children diagnosed with autism.

Researchers says they're getting closer to understanding autism by looking side the brain. Scientists at the University of Washington are using special glasses to measure a toddler's eye contact. "It records what I'm seeing, so I can see whether a child is looking at my eyes or my mouth," said Wendy Stone, PhD, Clinical Psychologist, UW Medicine.

Scientists are also looking at brain chemistry using MRI. "Kids with autism have about 10 percent bigger brains than other kids," Stephen R. Dager, MD, Professor of Radiology, UW Medicine said.

Doctors found between ages 3 and 10, children with autism and those with developmental delays had significantly less of an important brain chemical. However, by age 10, the autism group had normal levels, but the kids with delays were still low. Scientists believe this study shows development isn't fixed in autism.

"We also found that, in many ways, children bloomed and grew and became really interesting and wonderful people," said Annette Estes, PhD, Director, UW Autism Center, Susan & Richard Fade Endowed Chair, Research Associate Professor of Speech and Hearing Sciences, University of Washington.

Researchers are now studying three month old babies who have siblings with autism. They want to determine if very early alterations in brain cell signaling may precede early clinical symptoms of autism.

I love these stories. Autism is nothing to worry about. There's nothing urgent about research. Showing us happy children who look typical prove that kids like this have always been around and autism's not so bad.

Any news report that starts out saying, "One in 88 people is diagnosed with an autism spectrum disorder," but the whole thing is about CHILDREN, should scare people Now they're studying three month old babies. I can't wait for the announcement that they're looking for signs of autism at birth. More of the junk science used to convince the public that experts are working real hard on this mysterious disorder.

Medford OR Mail Tribune

Parents claiming an exemption from state-mandated immunizations now must clear another hurdle to keep their children in school.

A bill signed into law last June and going into effect in March requires that parents must either meet with a health care provider or watch an educational video about immunizations before declaring their child exempt.

"I think it will be challenged. They're trying to make it so difficult for people," said Cynthia Cournoyer, a Grants Pass resident and author of "What About Immunizations?," now in its seventh edition.

Cournoyer, who didn't immunize any of her three children, said forcing parents to see a traditional health care provider is unfair and hopes there will be little effect from the new law. . . .

I think the education parents receive should include a read-through of the material safety data sheet that comes with EACH VACCINE.

I posted comments.  Thank you, Cynthia Cournoyer.

Fox 13, Salt Lake City

A ground-breaking ceremony was held in Utah County for a new charter school for children with autism spectrum disorders.

Spectrum Academy opened its first location in North Salt Lake back in 2006, and Friday was the groundbreaking ceremony for the new Pleasant Grove location.

Terrie Elder is the parent of a Spectrum Academy student who spoke well of the program.

"It's incredible," Elder said. "I cry almost every week because he's treated like a rock star. The teachers are amazing."

Elder said she can't stress enough what an impact Spectrum Academy has had on her son Austin.

"I get really emotional because I love the school," she said. "I love the teachers, they dedicate so much to these kids."

At age 3, Austin was diagnosed with pervasive development disorder, or PDD, which falls in the autism spectrum. Utah has the highest number of autistic children in the nation, and Spectrum Academy Director Brad Nelson said specialty schools like theirs are in high demand.

"We have lots and lots of families that want our help and what we can do for them, and we just don't have the capacity to do that," Nelson said. . . .

Listen to the newscaster talk about the waiting list. AND NOT ONE PERSON IS WORRIED.

So Utah has the highest autism rate in the U.S. They don't even mention what it is OR tell us why it's so high.

Autism---the disaster we're all happy about.

I can't wait to see how many smiling faces there'll be when they're talking about paying for all these kids as adults.


Syracuse Post Standard

Gov. Andrew Cuomo has signed a bill into law that will eliminate a hurdle that has blocked families of children with autism from getting health insurance coverage of an intensive treatment known as applied behavioral analysis.

The law established a new state license for providers of applied behavioral analysis -- ABA for short. Without licenses, ABA providers could not be reimbursed for their services under the state's 2011 autism insurance reform law. The treatment can cost more than $80,000 a year.

Let me see, the story goes that Cuomo signed this great autism bill in 2011--only it didn't really do much because of an amendment

I-Team: Autistic Kids Denied Insurance Coverage Despite New Law

In 2011, Gov. Andrew Cuomo signed a bill mandating health insurers reimburse for ABA, but just before the law took effect in 2012, the New York Department of Financial Services made an emergency amendment to the regulation. The amendment allows insurance companies to deny coverage if an ABA provider does not also possess an additional license for psychiatry, psychology, social work or similar professions.

Most ABA providers are not state-licensed counselors and New York does not offer a license specifically for behavior analysts.

NOW THERE'S A NEW LAW.........

Here's is one comment....then look at the other comments. No one else is worried or in search of answers.

Here are some facts on autism: One of every 88 children is now diagnosed with autism. Autism cases have risen 23% in the last 2 years and 78% in the past 5 years. Autism is 5X more common in boys than girls. These are FACTS from the CDC (Center for Disease Control). Look it up yourself. With these types of statistics, don't you think that some money should be invested in both treatment and research to find out why this problem has multiplied so fast? Children with autism will have a tough time being productive adults in our society and that fact alone hurts our country. It is time that we start thinking farther than our own personal needs and look to the needs of our nation in the future.

Here's my comment....

The undeniable point here is that whenever we're talking about autism, we're talking a CHILDREN WITH AUTISM. Where are the 40, 50, 60 year olds with autism? How come no one is ever demanding services for them? The truth is, no one has ever been able to show us adults with autism at the same rate we see in our children--especially ones with severe autism. That fact should be scaring us all. Officially, autism has no known cause or cure. There's nothing a mainstream doctor can tell a new mother whose baby was born healthy and is developing normally so that her child doesn't also get sick, stop making eye contact, stop talking and regress into autism by age two.

The other fact that never gets covered by the media is that these children will cost the taxpayers trillions for lifetime care and we're doing nothing to prepare for this crisis. When will we have any answers about autism?

Anne Dachel is Media Editor for Age of Autism.

Posted by Age of Autism at January 13, 2014 at 6:00 PM in Anne Dachel Permalink

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