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Change in ASD diagnosis: Word from the Street

Posted Jan 24 2012 10:46am

I just this received this email from Michael Carley of GRASP re: controversy surrounding proposed changes in ASD diagnosis:

On 1/24/12 12:04 AM, "Michael John Carley" < > wrote

Please forward to anyone, or post wherever you deem appropriate...


The letters are tremendous, and the calls are having an impact. Please keep it up...letters and phone calls. And if this will really effect you; if your child is at risk of losing their education funding, if you or a loved one are at risk of losing housing, health, or employment services; or if you're simply a fellow spectrumite who worries about having your behavioral differences lumped back into the category of personal defect rather than wiring . . .

 . . . then maybe it's worth it to call every day?

Once again you can contact the American Psychiatric Association by calling 703.907.7300 or by emailing and .

Three updates
1. We're working on a petition that, once announced, will really need your help in circulating. Thank you in advance for whatever help you can give herein.

2. There has been some confusion over Dr. Fred Volkmar's quotes in the original NYTimes article that started this whole thing. This was somewhat inevitable because of the way his quotes were placed within the context, and . . . because sarcasm is simply something that we don't pick up at times. But his "epidemic" quote was sarcasm. Remember that Volkmar resigned his position on the DSM-5 Committee.

3. In your letters, a couple of times there has been some confusion over which proposed changes are the new ones we're protesting. Two years ago the proposed changes surrounded terminology—doing away with Asperger's Syndrome and PDD-NOS and having them combined with autism under a much broader diagnosis of Autism Spectrum Disorder. Feel free to write about your feelings on this, but understand that these are not the latest developments. The latest changes surround restricting the criteria so that multitudes of people will lose their diagnosis. Check our facebook page for prior day-by-day developments if you need the older posts for refresher info.

Thanks again y'all. More later.

Michael John Carley
Executive Director
The Global and Regional Asperger Syndrome Partnership, Inc.
666 Broadway, Suite 825
New York, NY 10012
p + f = 1.888.474.7277

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