It’s not often I post something from WebMD. But here it is, ya’ll! Publication bias. Something us ASD families have been talking about for a very long time.
It’s funny because this is a big part of our argument and we get told over and over that it’s simply not true. There is no bias and that if a study is done well, it should be accepted by journal gatekeepers and will find a home in journal. We’re told that the studies we cite were simply poorly done and not up to proper standards.
Yet here it is – they even have a word for it: publication bias.
Having gone the route of SSRIs in our early days, I know this is true. I know that the benefits of antidepressants are severely overstated and the overprescription of such drugs to 3 and 4 year olds is flat out dangerous.
Trust your doctor at your own risk. Healthy living isn’t rocket science. It’s not hard to read the material and learn and decide for yourself if something makes sense to you. There are risks with any medicine and we all take them. We know that some cause liver failure and some cause strokes and so on. But we also know that we take that risk ourselves as adults.
These are our children. They deserve more than lip service. They deserve every parent’s full knowledge of the risks and weighing of the evidence. Decide for yourself if the results are worse than the possible cures.
They turned my son into a psychopath. That was not worth the risk and it took a full 2 months to get him out of that mess and another month to get him back to normal. There is a black box label on these things for a reason.
Is your child so bad off that you need to try? For some, the answer to that question is an emphatic yes. And they’d probably find help there. At least, I hope so.
But for most, the answer is probably no. There are much safer options out there with a better track record.
Whatever you do, DO YOUR RESEARCH.
Do not be a parent that doesn’t have the answers to your own questions. Find them. You don’t need to be a doctor to find out what the pros and cons are of a medication. You don’t need to be a doctor to go to PubMed, to read the research or even read the insert. Ask questions. Find the answers. Discuss with your doctor, don’t let your doctor simply tell you what to do. Have a real conversation with real questions, real answers and don’t be afraid to tell your doctor no or ask for time to think about it. Understand that doctors are people and they don’t actually know everything. Some doctors prescribe a medication simply because that’s what you’re supposed to do and they really don’t know anything about it. I had one doctor argue with me when I told her I was on oral hydrocortisone simply because she’d never heard of it. She was adamant that no such thing existed. Clearly I’m too stupid to 1.) know my own medication that I’d been taking for a year and 2.) read the damn label.
Don’t be bullied into choices you aren’t ready to make.