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Thank you so much for illuminating a side of autism seldom represented in media. In fact, I have yet to see a documentary following a family raising a severely autsitic child with self injurious behaviors or seizures. The reality I face as a mother of an autistic young adult (as seen on youtube under autism self injury) is a world alone, isolated from the majority of autism support groups. Mainly because, in my opinion, in the past ten years, I have seen too many children I don't believe are really autistic labeled autistic. This has greatly hurt my son because now, the funds, energy and focus has shifted away from realities of autism and onto this false face of autism. Autism is now almost an industry, even cruise ships dedicated to providing vacations for the families of children with autism. Yep, that sounds real safe and fun. A massive ship, in the middle of the ocean, with my autistic, self injurious son. I don't know who these kids are on the ship, but years ago, the autistic kids I saw labeled were the type that may jump ship, so you wouldn't be sailing. I think it's time we become very concrete in how we describe autism because the diagnosis has been brutally compromised.
Kim Oakley Mother of a severely autistic son with self injurious behaviors and epilepsy
Diagnosed: 13 months with autism
16 months seizures began
2 1/2 self injurious behaviors emerged
Etiology unknown Born healthy. DPT 3months. 6 months. MMR 11 months.
Not blaming vaccines. But not sure, either. It's a mystery. Treatments we've tried: too many to list. But enough to know autism is not easily "cured" as some would have us believe.
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DailyRecord.co.uk is not as squeamish as CNN. In Help My Autistic Daughter Before She Kills Herself , the DR tells the story of Samantha, a seven year old Scottish girl who will sometimes beat her head off any solid object within reach. She has broken her own nose and fractured fingers while hitting her head with her own hands. Doctors think it is Samantha's autism which directly causes the self injurious behavior while Samantha's mother believes it is because she is suffering from an undiagnosed medical ailment, possibly a tumor, and pain which she can not understand or communicate. Regardless of which is the more accurate picture in Samantha's case many severely autistic children, are known to injure themself. My own son has engaged in self injurious behavior although nowhere nearly as seriously as Samantha whose parents are fighting to obtain the specialist services including autism specific education that Samantha needs.
The DailyRecord story includes two pictures of Samantha. One picture shows her without apparent injury and the other shows her extremely bruised face. You are unlikely to see such a hard autism reality on Dr. Sanjay Gupta's CNN autism productions but it is a reality that some parents of autistic children must face, and their children must suffer with, if they do not have access to the services of appropriate autism specialists.