Let me embrace thee, sour adversity, for wise men
say it is the wisest course.
time of year. We’ve flipped a calendar page
to a new month: the month of April. The month when autism groups, who make money
off of our kids’ diagnoses, go into full-fledge fundraising mode. From walking around in circles promoting
awareness to slapping a puzzle piece on every-day household products, this type
of fundraising saddens me. While our
children’s needs are used for another’s gain, these money-making tactics suck
the life out of me.
to be my favorite month. It ushers in
springtime weather and the awakening of new life. It also happens to be my birthday month. Now, when I think about April and how blue it
makes me feel, it’s the worst time of year.
Long before the month starts, I’m done with April and the autism ‘awareness’
and ‘celebration’ it brings.
Not only has
autism awareness been pushed so much that I’m blue in the face because of it, I
recently saw a new campaigns are asking us to embrace it. Embrace autism. Really?
I’ll embrace a lot of things, but I will never embrace autism. Before anyone jumps down my back saying I don’t
love the person behind the autism label, rest assured I do love that person. I love Ronan to the moon and back (well,
farther than that really because many of you know I will do everything I can
for him). HE is who I love. HE is my inspiration. HE is the reason I work so hard. But, to ask me to embrace WHAT grips him from
the inside out, what limits his abilities and his potential, and what he
struggles with almost every minute of every day? Never.
it. Autism, advertise it. Autism, wear it. Autism, it’s not so bad. Embrace it.
I don’t think
How about we
embrace the 1 in 50 (and quickly rising) autism rate? Embrace the need to open more people’s eyes. Why? Because
they obviously missed the memo on the autism epidemic and how it happened. Before it hits, let’s embrace what’s coming
next. Embrace the fact that young adults
on the spectrum will soon be spilling out of their school-age services and into
their communities with limited or no supports.
Those are cold, hard facts that are worthy of being embraced and what needs
to be acted upon now.
To embrace a
life-long, debilitating disorder that can hamper growth, delay development and reduce
independence is downright wrong. People
try to play down Ronan’s diagnosis and the devastation he and so many others
suffer. Making light of a grave
situation that is affecting him and a generation of children is the opposite of
what our society needs to have happen.
When I see whimsical
messages and posts about how wonderful autism is, it hurts. It hurts to know
that Ronan’s story hasn’t made a difference.
It hurts to know that someone took my son’s plight and wants to make a
buck off of it. It hurts to realize that
Ronan’s struggles aren’t understood, and it’s ridiculous to think that they
should be celebrated. How on earth could
I ever embrace that?
people who are cashing in our kids, shame on you. To the people and the groups I know who are
working tirelessly to help reduce our fears, our worries and our struggles so
that we can have the positive energy we need to care for our children affected
by autism, thank you. Thank you for your dedication and commitment to our
families. Your words, your efforts and your
actions make a difference.
the first day of a month that I no longer love.
It’s dreadful because it wasn’t too long ago that the month of April
gave me great joy. Despite the sadness I
feel because of the greed of others, nothing will stop me from showering Ronan
with all the love and the respect he so deserves. I embrace him. I embrace the chance to be his Mom. I embrace being able to give him the tools,
the time and the hope he needs for the future.
Ronan is my life and my joy. No
one can take away the awesomeness that he brings to my life. No one.
Jameson is a Contributing Editor for Age of Autism.