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ARI Looking For Autism Seizure Treatment Info

Posted Jul 03 2009 2:07pm

174

Autism Seizure Treatment Survey Now Online – Parents Urged to Provide Data

Survey aims to assess treatment efficacy and possible side effects

In January 2009 ARI held a think tank on seizures, and in May 2009 Autism One held a related think tank on seizures.  As a follow-up to those, Dr. Richard Frye is working with the attendees on a Consensus Paper on Seizures in Autism and How to Treat Them.

If your son/daughter (or you) suffers from seizures, we ask you to fill out a survey form created by Dr. Richard Frye with the help of Prof. James Adams, Science Coordinator of ARI/Defeat Autism Now.  We think that this very detailed form will provide a much richer understanding of the efficacy and possible side effects of current treatments for seizures.

Please help us by filling out the survey form if it applies to you, and also by forwarding information about this survey to other autism groups.

The purpose is to better understand seizures in individuals with autism spectrum disorders. The survey should take 5-20 minutes to complete, depending on the number of seizure treatments you have tried.

The form asks questions regarding types of seizures you have observed, whether seizures have seasonal variations or vary when allergies flare, and specific questions regarding medications you have used and their efficacy.

If you have more than one child with seizures, please fill out the form for each child.

Complete the Seizure Treatment Survey Online

Thank you very much for helping us find answers to seizures in autism.

Sincerely,

Richard E. Frye, M.D., Ph.D., F.A.A.P..
Assistant Professor of Pediatrics and Neurology
University of Texas-Houston

James B. Adams, Ph.D.
Professor, Arizona State University
http://autism.asu.edu
Science Coordinator, Autism Research Institute/Defeat Autism Now!

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