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Ashley's Mom Patient Expert

California
Ashley's Mom (Deborah), once a police officer, is now a computer professional who balances her work life and her very busy home life as the single parent of four unique children. Deborah's  birth son, Chip, is 18 years old and will be going off to college in the Fall of 2009. When Chip... Full Bio
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Spring Breaking by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities It's Spring Break for the kids.  It's also time for flower planting, zoo visiting, ice cream eating, napping, and all those other wonderful things we can do when we don't h ... Read on »
Ouch! by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities I wake up every morning with hands so swollen that they can hardly bend.  They ache, as do my elbows, shoulders, and knees.  Every so often, my hips and feet jump in ... Read on »
Competitor - Winner! by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Ronnie competed in the Mid-Atlantic wheelchair games this weekend.  He even came in 1st in his age group in the 100, 200, 400 and 800 meter races!  Way to go, Ronnie! ... Read on »
My Day Begins... by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities It's 4am. Time to get up. Get myself showered, hair dried, make up on. Feed the dogs - one at a time - outside because they are such pigs Prepare Ashley's mo ... Read on »
Spring Has Sprung by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities And this sums up exactly how I feel!!! Read on »
Blenderized by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities I need some help from other parents who tube feed a blenderized diet to their child. Ashley, though she takes most of her food by mouth, needs some supplemental tube ... Read on »
Shoes, Racing, Games and Cake! by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities I was quite an exciting weekend in the Nickerson household! Ronnie competed in the Monument Avenue 10k race, and came in 2nd in the wheelchair division.  His picture w ... Read on »
No Easy Answers by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Ashley is a very medically complicated person.  She has deafblindness, epilepsy, brain tumors, ADHD, feeding issues....and after our visit with the endocrinologist yesterda ... Read on »
Special Exposure Wednesday by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Just 3 more days until Ronnie competes in his first road race.  The Monument Avenue 10k is this coming Saturday, and Ronnie has been training hard.  I don't think he will h ... Read on »
Purely and Simply, A Work of Art by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Each year, SPARC - the School for The Performing Arts in the Richmond Community sponsors Live Art.  Live Art is a groundbreaking, inclusive arts education program for st ... Read on »
A Mom Asks For Advice by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities A mom to a preschool-aged child with disabilities has asked me to poll you, dear readers, for some advice.  I have never met either the mom or the child, so the descripti ... Read on »
Systems Unchanged by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Soon after I adopted Ashley 17 years ago and began my journey into the world of special needs, I decided to work as hard as I could to make things better for her and ... Read on »
No More Snow! by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities We have officially run out of things to do on snow days.  There have been so many this year that I believe my children are actually looking forward to school.  Yesterday's ... Read on »
If It Quacks Like A Duck... by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities I recently received a bill from Jessica's group home for cable TV services in excess of the basic 99 channel service.  Although the group home company had been paying for ... Read on »
Leading Our Communities by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Being a parent comes with a lot of responsibility.  Being a parent of a child or children with special needs brings even more responsibility, but until a few days ago, I ha ... Read on »
Special Exposure Wednesday by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Spring really is coming!  Given all the snow and cold weather, I had my doubts...but my baby tulips tell me otherwise! Read on »
Communication Is Not Just Words by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Ashley is deaf and uses sign language to communicate.  She does not speak any words, but that doesn’t mean she is quiet!  She has an entire repertoire of sounds, and ... Read on »
One After The Other by Ashley's Mom Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities I go back and forth about this - is it easier to be sick and have well kids, or have sick kids and be well myself?  Or is the worst thing to be sick AND have sick kids?  I ... Read on »