Treatments For Hemolytic Uremic Syndrome - Articles

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FDA approves Soliris (Eculizumab) for atypical HUS by Kamal S. Patient Expert

Posted Sat 24 Sep 2011 9:24am In a significant development the FDA in the USA approved Soliris ( Eculizumab ) for use in atypical Hemolytic Uremic Syndrome . To those saying, "Huh?": Read on! Atypical Hemolytic Uremic Syndrome (aHUS) is a rare disease that afflicts mainly children and a few adults. It causes kidney failure in a lot of cases. I have that disease and it ... Read on »

The little boy with atypical HUS by Kamal S. Patient Expert

Posted Tue 02 Mar 2010 4:58pm I got a call one evening. "Is this Kamal?" "Yes. Who is this?" "This is Rajesh. My nephew is a three year old boy and has been diagnosed with HUS." At that instant, a flood of emotions went through me. HUS. Hemolytic Uremic Syndrome. Where the body's defense mechanism against foreign bodies goes bonkers and star ... Read on »

Atypical HUS Patient conference at Newcastle by Kamal S. Patient Expert

Posted Tue 22 Mar 2011 9:05pm The Center for Life at Newcastle upon Tyne, UK, is organizing a conference for patients and their family on atypical Hemolytic Uremic Syndrome on Saturday, June 11th. This is a great initiative by Dr. Tim H. Goodship, whose lab found out that I had the CFH/CFHR1 hybrid gene due to which my kidneys failed and my transplant did not work out. D ... Read on »

Are HUS and TTP related? by pathologystudent Posted Mon 29 Nov 2010 8:33am Q. Is there a relationship between hemolytic-uremic syndrome and thrombotic thrombocytopenic purpura? I see them lumped together a lot. Also, what does it mean to treat an HUS patient supportively? A. Yes, there is a relationship between HUS and TTP. In both disorders, there is widespread small vessel thrombosis. Some of the symptoms of ... Read on »

Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »

Health Headlines - September 26 by Meredy Registered Nurse

Posted Mon 26 Sep 2011 12:01am FDA approves Alexion's rare blood disease drug U.S. health regulators cleared on Friday an Alexion Pharmaceuticals Inc drug for adults and children with a very rare genetic disorder, as the company expands the uses of its flagship medicine. The Food and Drug Administration approved Soliris for children and adults with atypical hemolytic ure ... Read on »

FDA Approves Soliris for Rare Pediatric Blood Disorder by Medline Plus Posted Tue 27 Sep 2011 7:56am FDA approves Soliris for rare pediatric blood disorder Orphan drug receives second approval for rare disease The U.S. Food and Drug Administration today approved Soliris (eculizumab) to treat patients with atypical Hemolytic Uremic Syndrome (aHUS), a rare and chronic blood disease that can lead to kidney (renal) failure an ... Read on »

Plasmapheresis versus Eculizumab versus Status Quo by Kamal S. Patient Expert

Posted Sat 09 Jul 2011 1:14pm So, I have this rare disease called Atypical Hemolytic Uremic Syndrome (aHUS). There are probably a handful of adults in the world that have it. In this disease there is uncontrolled activation of the alternate complement pathway (alternate mechanism of protecting the body against foreign invasions, so to speak). It has been proved that I have ... Read on »

Microangiopathic hemolytic anemia by pathologystudent Posted Fri 31 Jul 2009 11:55am We’ve talked about a whole bunch of different hemolytic anemias over the past few weeks. We’ve gone through the main hereditary hemolytic anemias: hereditary spherocytosis (and its less-common counterpart, hereditary elliptocytosis ), glucose-6-phosphate dehydrogenase deficiency, the hemoglobinopathies (like sickle cell anemia) and the thalas ... Read on »

Bacteria and Foodborne Illness by Dr. Anshu Gupta Patient Expert

Posted Tue 02 Jun 2009 4:40pm What are foodborne illnesses? Foodborne illnesses are caused by eating food or drinking beverages contaminated with bacteria, parasites, or viruses. Harmful chemicals can also cause foodborne illnesses if they have contaminated food during harvesting or processing. Foodborne illnesses can cause symptoms that range from an upset s ... Read on »