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Treacher Collins Syndrome - Articles
Health Headlines - October 14
by
Meredy
Posted
Tue 13 Oct 2009 10:01pm
Snowe Votes With Dems on Health Care Reform Bill
In a symbolic victory for Democrats, Republican Sen. Olympia Snowe crossed party lines and voted for a Democratic health care reform bill on Tuesday.
The Democrats hold a 13-10 majority on the Senate Finance Committee, which ensured passage of a 10-year, $829-billion plan bill that requires n ...
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Is Your Disease on the RARE List™ – If So, More Bad News!
by
Chris H.
Posted
Mon 06 Feb 2012 3:01pm
I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™?
Last week, the R.A.R.E. Project and Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ...
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I say 'gobbledygook!'
by
Louise
Posted
Thu 22 Mar 2012 6:58pm
I know nothing about philosophy in the academic sense.
And, after reading this paper published in the Journal of Medical Ethics , I have no interest in knowing anything about it.
In After-birth abortion: Why should the baby live? a philosopher and an ethicist argue that killing newborns – before they have neurologi ...
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What if my baby is born like me?
by
Shona D.
Posted
Fri 15 Apr 2011 8:51am
As I have already mentioned in this blog, we had TV cameras filming us for part of our IVF with pre-implantation genetic diagnosis (PGD). It was so that we could go in a documentary about Jono Lancaster and his girlfriend Laura. Steve and I really enjoyed being involved in the documentary, even if just in a small way. I am pleased as it get ...
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Saturday, September 12th, 2009
by
peytonsparents
Posted
Sat 12 Sep 2009 12:00am
After much anticipation it was finally the day for the CCA picnic. CCA is Children's Craniofacial Association which is a wonderful organization that provides education and support to children and their families who like me have a craniofacial syndromes. Please check them out at ccakids.com! September is Craniofacia ...
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Mandibular Distraction Surgery in Houston
by
Hpcsurgery
Posted
Tue 07 Aug 2012 5:10am
Each portion of the face is important with regard to the overall facial appearance. Any oddity in facial appearance may have a negative impact on one’s self confidence. A bent nose, tired eyelids, deep nasolabial folds, wrinkled forehead and protruding ears can each play its part in making one look less than handsome or beautiful. Some factors s ...
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PGD in a BBC3 documentary
by
Shona D.
Posted
Thu 13 Jan 2011 2:59pm
I was contacted by a researcher the other day, who was interested in learning more about PGD. I promised I would let him write something for my blog as he’s trying to contact others who are having PGD. I hope some people get in touch with him. I think documentaries like the one they are making are really good as they help raise awareness of pa ...
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Meeting Jono and Laura on egg collection day
by
Shona D.
Posted
Mon 28 Feb 2011 2:22pm
Yesterday on egg collection day, we met Jono and Laura who are researching their options for when they decide to have children. In vitro fertilisation (IVF) with pre-implantation genetic diagnosis (PGD) is one of their potential route to having children, and avoiding passing on Treacher Collins syndrome. They had the opportunity to chat to Stev ...
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Obstructive Sleep Apnea Treatment in Texas
by
Hpcsurgery
Posted
Wed 14 Mar 2012 2:53am
Obstructive Sleep Apnea – An Introduction
Many children and adults suffer from Obstructive Sleep Apnea (OSA) - a common sleep disorder. Partial or complete blockage of the upper airway happens when the soft tissue at the end of the throat collapses and disrupts the person’s breathing. In order to continue breathing normally, the person get ...
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