Sean Astin's connection to Chiari and Syringomyelia
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Zipperhead ..Posted
Mon 25 Aug 2008 4:12pm
Please go to ASAP to listen to Sean Astin's PSA (Public Service Announcement) regarding Chiari Malformation and Syringomyelia. Astin is known for The Lord of the Rings trilogy, as well as movies like Goonies and Rudy .
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Syringomyelia (SM) and the King Charles Cocker Spaniel
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stipeygirl75Posted
Thu 10 Dec 2009 12:00am
Saw this on the news this morning:
http://www.cavalierhealth.org/syringomyelia.htm
This is what I have, except for the SM part (I only have the Chiari crowding, no SM). It says that upon diagnosis dogs will be euthanized?! Holy crap! No one has euthanized ME yet :) and also it was interesting to note that the disorder gets worse with each
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Chiari expert speaks March 14
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DebbiePosted
Tue 13 Oct 2009 10:06pm
Dr. John J. Oro, a specialist in the rare disorders chiari and syringomyelia, will speak at a free seminar next month.Oro is medical director of the Neurosurgery Center of Colorado and founded the Chiari Care Center. His topic is "The Chiari I Malformation & Syringomyelia: A Current Synthesis." Also speaking is Katie Klas, a pediatric nurse
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CNS/ASAP Fellowships
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DebbiePosted
Tue 13 Oct 2009 10:06pm
or receive special training particular to syringomyelia and/or Chiari malformations. These fellowships provide a unique opportunity to encourage upcoming neurosurgeons to explore the complex issues surrounding syringomyelia and Chiari
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Why I Can See
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Puglet ..Posted
Sat 29 Nov 2008 12:20pm
I was winking at the camera for M, hence my lack of eyeballs.
These are bright blue in real life, and the gold/green streak down the sides compliments my gold and green nose ring perfectly.
And now I can see, that is until my glaucoma/fake glaucoma/syringomyelia/chiari/SSBDB/pug hair wad implodes.
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Announcements and News
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Christine from WIPosted
Mon 17 Nov 2008 11:44pm
the month of September as Chiari and Syringomyelia Awareness Month! It is very exciting to read "Now, therefore, I Jack Harper, Arizona State Senator, do hereby designate each September as Chiari and Syringomyelia Awareness Month." We are honored and blessed to have received this wonderful recognition! Our deepest gratitude to Senator Jack Harper!
Debbie
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Announcements and News
by
Christine from WIPosted
Mon 17 Nov 2008 11:44pm
the month of September as Chiari and Syringomyelia Awareness Month! It is very exciting to read "Now, therefore, I Jack Harper, Arizona State Senator, do hereby designate each September as Chiari and Syringomyelia Awareness Month." We are honored and blessed to have received this wonderful recognition! Our deepest gratitude to Senator Jack Harper!
Debbie
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Babette blanket FINISHED!
by
Zipperhead ..Posted
Tue 26 Aug 2008 12:32pm
.
While I'm here I'm going to do some shameless plugs. Christmas Day will be my CafePress Chiari/Syringomyelia store's 3rd anniversary. It's hard to believe it's been that long! I designed all the items there and 100% of the profit goes to the Research Fund at the American Syringomyelia Alliance Project , also known as ASAP, a 501(c)(3). I have a design
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Dear Boy Who Has Found All My Blogs
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Puglet ..Posted
Sat 29 Nov 2008 12:19pm
It would be helpful for you to google syringomyelia or syrinx or chiari 1 malformation instead of using my terminology of " spinal bubble of doom".
While it amuses me to no end to call it the Spinal Bubble of Doom, the Spinal Tubular Bubbular, and other assorted things with the phrase spinal bubble in it, it isn't going to be of much use to you
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Preston
by
DebbiePosted
Tue 13 Oct 2009 10:06pm
Preston was diagnosed with Chiari 1 Malformation and Syringomyelia in the Spring of 2008 after suffering from severe headaches...at the age of 6 years old. He underwent posterior fossa decompression in June, 2008. He had a 20mm cerebellar tonsil herniation prior to surgery and a syrinx from T2-T8. Surgery went well. Shortly after surgery, however, he
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