Protoporphyria Erythropoietic

The Epps +1 by Humblebee Design Boutique Facebook

Posted Sat 02 Jul 2011 9:37am It was such a pleasure documenting a snippet of The Epps' happiness. "Sassy", as the baby is currently nicknamed, will be joining us this September and from the love shared by her parents, I'd say she is quite a lucky little girl. To see all the pictures from the "The Epps +1" sitting, visit the Humblebee Facebook page. Congratulations Steven Read on »

Nitroxide Radical as a Treatment for Neurodegeneration by nih.gov Posted Mon 31 Dec 2007 4:00pm in the central nervous system, including Alzheimer’s and Parkinson’s disease, erythropoietic protoporphyria or adult-onset neurodegeneration. Development Status: Early-stage Inventors Read on »

Rare Disease Foundations Need To Vote 4 Hope In Pepsi Refresh by Chris H. Posted Wed 01 Sep 2010 7:53pm or PKS, Erythropoietic protoporphyria, Spinal Muscular Atrophy Type 1, Spinal Muscular Atrophy Type 2 , Recessive dystrophic epidermolysis bullosa , Bruguda Syndrome , NBIA Read on »

Genes Or Environment . . . Or Environment? by Seth Roberts .. Doctor of Philosophy

Posted Tue 14 Jul 2009 10:06pm mother has it; her father had it. It’s called Erythropoietic Protoporphyria. It is autosomal-dominant. Scientists even know where the gene is. That’s where the understanding... across a “genetic disorder” such as Erythropoetic Protoporphyria, it is likely to imply an environmental problem. No one had ever told Aaron or his mother or her father Read on »

Product Review: Hirsana Capsules for Skin, Hair, and Nails by Nicki Z. Patient Expert

Posted Sun 12 Jul 2009 10:05pm turnover rates. In fact, daily supplementation of beta-carotene in the prescription treatment Lumitene® has been found to be effective in treating the symptoms of erythropoietic protoporphyria, a rare inherited genetic disorder of porphyrin-heme metabolism that often results in photosensitivity (painful skin sensitivity to sunlight), as well as gallstones Read on »

Antioxidants: Chemistry and Their Impact on Health by Jan Posted Fri 11 Sep 2009 4:57pm , forming an excited state molecule (Krinsky, 1993). Quenching of singlet oxygen is the basis for beta-carotene's well known therapeutic efficacy in erythropoietic protoporphyria Read on »

Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »

At Least the Weather Is Nice… by healthyhappier Facebook

Posted Fri 18 Feb 2011 3:52pm ’re planning a wedding all over again. We reminisced as we drove through Savannah, taking in old familiar sites. This abandoned building was at one time Charlie Epp Read on »

Queen Latifah’s birthday party with Cover Girl by Nadine H. Patient Expert

Posted Sun 29 Mar 2009 3:12pm All hail the Queen! Saturday night, I was invited by Cover Girl to Queen Latifah’s birthday party in Hollywood. It was, in a word, awesome. Every five feet, my friend R. and I would trip over another celebrity (Quincy Jones, Harvey Weinstein, Tracy Morgan, Paris Hilton, Kim Kardashian, Omar Epps, Viveca Fox and Raven-Symone, to name a few Read on »

Hackers Profit from Illicit Pharmacies by Ed H. Doctor of Pharmacy

Posted Fri 12 Aug 2011 6:11pm , Nektarios Leontiadis from the Department of Engineering and Public Policy (EPP), and Tyler Moore from Wellesley College, found that rogue websites were redirecting consumers Read on »

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