Protoporphyria

Genes Or Environment . . . Or Environment? by Seth Roberts .. Doctor of Philosophy

Posted Tue 14 Jul 2009 10:06pm mother has it; her father had it. It’s called Erythropoietic Protoporphyria. It is autosomal-dominant. Scientists even know where the gene is. That’s where the understanding... across a “genetic disorder” such as Erythropoetic Protoporphyria, it is likely to imply an environmental problem. No one had ever told Aaron or his mother or her father Read on »

Nitroxide Radical as a Treatment for Neurodegeneration by nih.gov Posted Mon 31 Dec 2007 4:00pm in the central nervous system, including Alzheimer’s and Parkinson’s disease, erythropoietic protoporphyria or adult-onset neurodegeneration. Development Status: Early-stage Inventors Read on »

Rare Disease Foundations Need To Vote 4 Hope In Pepsi Refresh by Chris H. Posted Wed 01 Sep 2010 7:53pm or PKS, Erythropoietic protoporphyria, Spinal Muscular Atrophy Type 1, Spinal Muscular Atrophy Type 2 , Recessive dystrophic epidermolysis bullosa , Bruguda Syndrome , NBIA Read on »

Product Review: Hirsana Capsules for Skin, Hair, and Nails by Nicki Z. Patient Expert

Posted Sun 12 Jul 2009 10:05pm turnover rates. In fact, daily supplementation of beta-carotene in the prescription treatment Lumitene® has been found to be effective in treating the symptoms of erythropoietic protoporphyria, a rare inherited genetic disorder of porphyrin-heme metabolism that often results in photosensitivity (painful skin sensitivity to sunlight), as well as gallstones Read on »

What I need to know about Cirrhosis of the Liver by Dr. Anshu Gupta Patient Expert

Posted Tue 02 Jun 2009 4:39pm much iron and stores the excess iron in the liver, pancreas, and other organs Wilson disease, which is caused by the buildup of too much copper in the liver protoporphyria Read on »

Antioxidants: Chemistry and Their Impact on Health by Jan Posted Fri 11 Sep 2009 4:57pm , forming an excited state molecule (Krinsky, 1993). Quenching of singlet oxygen is the basis for beta-carotene's well known therapeutic efficacy in erythropoietic protoporphyria Read on »

At Least the Weather Is Nice… by A Healthy, Happier Bear Facebook

Posted Fri 18 Feb 2011 3:52pm ’re planning a wedding all over again. We reminisced as we drove through Savannah, taking in old familiar sites. This abandoned building was at one time Charlie Epp Read on »

Queen Latifah’s birthday party with Cover Girl by Nadine H. Patient Expert

Posted Sun 29 Mar 2009 3:12pm All hail the Queen! Saturday night, I was invited by Cover Girl to Queen Latifah’s birthday party in Hollywood. It was, in a word, awesome. Every five feet, my friend R. and I would trip over another celebrity (Quincy Jones, Harvey Weinstein, Tracy Morgan, Paris Hilton, Kim Kardashian, Omar Epps, Viveca Fox and Raven-Symone, to name a few Read on »

The decision to start an EMR: funding from the government by Dr. Michelle G. Medical Doctor

Posted Mon 03 Nov 2008 9:01pm this was done. In October 2001, the ePhysician Project (ePP) was created by the Ontario government and the Ontario Medical Association to choose IT software for family practices opting.... Software companies had to go through the ePP certification process to be eligible for a subsidy. 13 companies were initially certified ( list ). The certification documents can Read on »

SC NBCT Policy Summit by Sheryl N. Patient Expert

Posted Wed 07 Jan 2009 6:28pm some of SC's most needy students using a process I designed for that purpose. Dr. Ed Epps, one of the NBCT facilitators with which I had the privilege of working, is pictured below during one of his sessions. Hodges Consulting Group, one the sponsors of the Summit, quoted Ed Epps in their press release about the event. "I'm looking forward to coming Read on »

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