Health knowledge made personal
WellPage for Progressive Ataxia
+ Bookmark › Share
Go
Search posts:

Progressive Ataxia - Articles

Genetics Home Reference: PRICKLE1-related progressive myoclonus epilepsy with ataxia by nih.gov Posted Fri 16 Dec 2011 3:30pm On this page: Description Genetic changes Inheritance Treatment Additional information Other names Glossary definitions Reviewed December 2011 What is PRICKLE1-related progressive myoclonus epilepsy with ataxia? PRICKLE1-related progres ... Read on »
Ride Ataxia NorCal - True Progress by Kyle Bryant Posted Thu 26 May 2011 2:24pm Ride Ataxia NorCal took place on May 14, 2011 and was a day of comraderie and true progress toward our goal of treating Friedreich's ataxia (FA).  The ride included more than 300 riders who helped raise over $100,000 for FA research! The weekend Started with packet pickup at Ken's Bike and Ski on Friday afternoon.  We set up in the parki ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
Parelaphostrongylus (Brainworm) Infection in Deer and Elk and the potential for CWD TSE prion consumption and spreading there fr by Terry S. Patient Expert Posted Sat 21 Dec 2013 12:43pm Parelaphostrongylus (Brainworm) Infection in Deer and Elk and the potential for CWD TSE prion consumption and spreading there from ?     Greetings everyone et al, and Merry Christmas,   I am hoping, and praying, that 2014 will bring forth much needed funding for the TSE prion scientist around the globe.   ... Read on »
Genetics Home Reference: progressive external ophthalmoplegia by nih.gov Posted Tue 14 Jun 2011 4:27pm On this page: Description Genetic changes Inheritance Treatment Additional information Other names Glossary definitions Reviewed June 2011 What is progressive external ophthalmoplegia? Progressive external ophthalmoplegia ... Read on »
The French surveillance network of Creutzfeldt–Jakob disease. Epidemiological data in France and worldwide UPDATE by Terry S. Patient Expert Posted Thu 18 Apr 2013 2:24pm Update article The French surveillance network of Creutzfeldt–Jakob disease. Epidemiological data in France and worldwide Le réseau de surveillance français de la maladie de Creutzfeldt–Jakob. Données épidémiologiques en France et dans le monde J.-P. Brandela, http://origin-cdn.els-cdn.com/sd/entities/REcor ... Read on »
Insight into the frequent occurrence of dura mater graft-associated Creutzfeldt-Jakob disease in Japan by Terry S. Patient Expert Posted Sat 20 Apr 2013 5:34pm J Neurol Neurosurg Psychiatry doi:10.1136/jnnp-2012-304850 Neuroinfection Research paper Insight into the frequent occurrence of dura mater graft-associated Creutzfeldt-Jakob disease in Japan Tsuyoshi Hamaguchi1, Kenji Sakai1, Moeko Noguchi-Shinohara1, Ichiro Nozaki1, Ichiro Takumi2 ... Read on »
Ride Ataxia Exceeds $1 Million In Funded Research by Kyle Bryant Posted Mon 12 Dec 2011 12:32pm Ride Ataxia is making a big impact toward treatments for FA by directly funding research. When every day is critical to each of us it is important to recognize milestones as they pass to keep ourselves motivated and pushing forward as fast as possible. The new FARA newsletter will be hitting mailboxes over the next couple of weeks and there is ... Read on »
Creutzfeldt-Jakob disease with unusually extensive neuropathology in a child treated with native human growth hormone by Terry S. Patient Expert Posted Sun 10 Feb 2013 10:43pm Clin Neuropathol. 2012 May-Jun;31(3):127-34. Creutzfeldt-Jakob disease with unusually extensive neuropathology in a child treated with native human growth hormone. Mikol J, Deslys JP, Zou WQ, Xiao W, Brown P, Budka H, Goutieres F. Source ... Read on »
Sporadic Creutzfeldt-Jakob disease causing a 2-years slowly progressive isolated dementia by Terry S. Patient Expert Posted Fri 11 Dec 2009 6:55pm ----- Original Message ----- From: Terry S. Singeltary Sr. To: CJD-L@LISTS.AEGEE.ORG Sent: Friday, December 11, 2009 9:06 PM Subject: Sporadic Creutzfeldt-Jakob disease causing a 2-years slowly progressive isolated dementia Sporadic Creutzfeldt-Jakob disease causing a 2-years slowly progressive isolated dementia Journal Behavioural ... Read on »