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In Light of Palin's selection as VP- Press Release about Down syndrome by Jan Patient Expert Posted Sat 13 Jun 2009 12:06am Hot off the press, for the press. Feel free to pass it on to local media! FOR IMMEDIATE RELEASE National Down syndrome Society and National Down syndrome Congress Contact: Sarah Schleider 212-763-4369 / 917 921 9889 (cell) sschleider@ndss.org Governor Sarah Palin of Alaska has been selected as John Mc ... Read on »
UK press wakes up to Down’s syndrome statistics by WelcometoIllinois Patient Expert Posted Tue 27 Oct 2009 11:02pm Back in April I reported on the latest statistics on Down’s syndrome births in England and Wales from the UK’s National Down Syndrome Cytogenetic Register, noting that I hadn’t seen any reporting of the latest statistics in the mainstream press. Six months, and an article in the British Medical Journal, later and Down’s syndrome stories ar ... Read on »
International Down Syndrome Coaltion For Life Press Conference by IDSC for Life Patient Expert Posted Wed 04 Nov 2009 10:02pm Leticia Velasquez The IDSC For Life will be making a statement sharing our concerns about the current health care reform bill. IDSC member, Leticia Valazquez, mom to beautiful Christina Valasquez, will be speaking on behalf of all of the members of the IDSC For Life. At 10:00 this morning, Leticia, along with several other families, wi ... Read on »
International Down Syndrome Coaltion For Life Press Conference by IDSC for Life Patient Expert Posted Tue 15 Sep 2009 11:03pm Leticia Velasquez The IDSC For Life will be making a statement sharing our concerns about the current health care reform bill. IDSC member, Leticia Valazquez, mom to beautiful Christina Valasquez, will be speaking on behalf of all of the members of the IDSC For Life. At 10:00 this morning, Leticia, along with several other families, wi ... Read on »
Hot off the Press from NIH News: Scientists to discuss research on XMRV in blood, chronic fatigue syndrome by Andrea P. Patient Expert Posted Mon 23 Aug 2010 6:33am For Immediate Release Monday, August 23, 2010 Contact Kelli Carrington (301) 594-5798 News Advisory Scientists to discuss research on XMRV in blood, chronic fatigue syndrome What: Telebriefing by experts from the ... Read on »
Doctor Barred From Australia, Son Has Down Syndrome by IDSC for Life Patient Expert Posted Wed 04 Nov 2009 10:02pm Yes, it is true.  Dr. Bernhard Moeller  has been barred from Australia, due to the fact that his son has Down syndrome.  While many of us gasp at the thought of this, in many ways it is more common than we might imagine.  If we take the time to reflect on the world wide termination rate of children with Down syndrome in utero,  one would conc ... Read on »
William "The Refrigerator" Perry hospitalized in serious condition due to complications of Guillan-Barré syndrome by Dr. Brian M. Medical DoctorHealth Maven Posted Thu 23 Apr 2009 3:44pm According to an associated press report, the gargantuan defensive tackle William "The Refrigerator" Perry (pictured below), who helped lead the Chicago Bears to a 1985 Super Bowl victory, has been hospitalized after complications related to Guillan-Barré syndrome (GBS). Perry remains in serious condition at Aiken Regional Medical Center, loc ... Read on »
Rhadoid Tumor Predisposition Syndrome: A recently defined genetic syndrome by Dr. Brian M. Medical DoctorHealth Maven Posted Mon 19 Jan 2009 1:19am 1 Comment With all the hullabaloo surrounding the 2007 revision of the World Health Organization Classification of Tumors of the Central Nervous System (4th edition), the fact that the WHO consensus committee also recognized a new genetic syndrome got lost in the mix. Here's the scoop on the new syndrome: Rhabdoid Tumor Predisposition Syndrome (RTPS) is ... Read on »
Green Tea proven to help memory and motor skills in those with Down syndrome by Leticia V. Patient Expert Posted Tue 12 Apr 2011 10:00am This is amazing news!  The first positive therapeutic trial of a substance we all know, Green Tea, which improves both memory and psychomotor skills, with absolutely NO side effects!! I am boiling the kettle as I write, I am preparing iced green tea for Christina when she comes home from school! Of course, there is no information on dosag ... Read on »
Me and my operation: carpal tunnel syndrome | Mail Online by Helge V. K. Patient Expert Posted Sun 24 Aug 2008 5:10pm Me and my operation: carpal tunnel syndrome | Mail Online : "Me and my operation: carpal tunnel syndrome by ANGELA BROOKS, Daily Mail. I've been looking at articles about carpal tunnel syndrome in press and other medias. Below is a story from the British Daily mail. I write my bulleted comments between the lines. The NHS un ... Read on »