Neurofibromatosis Type-1 - Articles

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Fellow Fighter Destiny-Neurofibromatosis by megse5 Patient Expert

Posted Wed 20 May 2009 12:08pm

2 Comments “My daughter Destiny is 9 and she has Neurofibromatosis (Nf). All I do is tell her story and I spread awareness to whoever will listen. You would be surprised how many doctors and nurses that don't know what Nf is for instance here is my daughter's story. Destiny was 10 months old when she was trying to walk. She took 2 or 3 steps and ... Read on »

Give us the answer to Neurofibromatosis by nilynaiman Posted Sun 19 Oct 2008 8:18am Neurofibromatosis 1 week ago Neurofibromatosis is a genetically-transmitted disease in which nerve tissue grows tumors (e.g. neurofibromas) that may be harmless or may cause serious damage by compressing nerves and other tissues. The disorder affects all neural crest cells (Schwann cells, melanocytes, endoneurial fibroblasts). Cellular eleme ... Read on »

I Met A Child…… I met a young child tonight with Neurofibromatosis. I’d have to admit it’s not in by Blessed Angel Posted Wed 04 Nov 2009 10:06pm I met a young child tonight with Neurofibromatosis. I’d have to admit it’s not in my scope of medicine so I had to Google it. Here’s a site I found about the subject. http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm I can only imagine how difficult it must be for her parents to go through such a difficult and try ... Read on »

Thalidomide for neurofibromatosis by Mark Levin Posted Sun 30 May 2010 12:00am Multiple plexiform fibromas are a hallmark of type 1 neurofibromatosis, which condition also presents with other findings and symptoms. It can appear as cafe-au-lait spots and bumps under the skin, or it can lead to complications that include blindness, scoliosis and disfigurement. Fibromas can cause pain and compromise other organs. ... Read on »

Gleevec for neurofibromatosis by Mark Levin Posted Thu 28 Jul 2011 8:16pm Multiple plexiform fibromas are a hallmark of type 1 neurofibromatosis, which condition also presents with other findings and symptoms. It can appear as cafe-au-lait spots and bumps under the skin, or it can lead to complications that include blindness, scoliosis and disfigurement. Fibromas can cause pain and compromise other organs. Few tre ... Read on »

Avastin for Neurofibromatosis by Mark Levin Posted Wed 25 Jan 2012 2:39am Multiple plexiform fibromas, Schwannomas and accoustic neuromas are a hallmark neurofibromatosis, which condition also presents with other findings and symptoms. It can appear as cafe-au-lait spots and bumps under the skin, or it can lead to complications that include blindness, scoliosis and disfigurement. Fibromas can cause pain and compro ... Read on »

Nguyen Thi Hien with huge facial tumors from neurofibromatosis by EyeDrD Posted Thu 26 Apr 2012 12:35pm She has carried multiple tumors on her body for half a century, with the two biggest growths hanging on her face and back. “I am too old to be treated, so it is likely that I will live with these lumps till my last breath,” she sighs. Your Ad Here 53-year-old Nguyen Thi Hien, hailing from t ... Read on »

7 kg Tumor Of Neurofibromatosis Successfully Removed For Nguyen Thi Lam by EyeDrD Posted Wed 06 Feb 2013 7:30am Doctors in Hanoi have successfully reduced a giant tumor on the back of a woman that was as large as the 20-year-old carrier herself. Previously, she had to wear large clothes to cover the tumor, which descended down to her … Continue reading → From: Eye Dr DeLengocky Read on »

Best Post of December '07 by Dr. Brian M. Medical Doctor

Posted Sun 24 Aug 2008 5:24pm This post was an answer to a quiz question posed on the previous day: From what disease did "the Elephant Man" suffer? Joseph Merrick was originally thought to be suffering from neurofibromatosis type I, a genetic disorder also known as von Recklinghausen's disease. However, it was postulated in 1986 that Merrick actually suffer ... Read on »

My Angel Baby by Olivia Hernandez Patient Expert

Posted Thu 07 May 2009 9:24pm Before discovering I was pregnant with J.T. I was a hot mess. I won't even lie. I did what I wanted, when I wanted, and was all about immediate gratification. I was morbid and allowed myself to float from bad situations to worse situations. The very day I found out I was pregnant with J.T., I began to live. From that moment on little man has gi ... Read on »

Neurofibromatosis Type-1

Neurofibromatosis Type-1 - Articles

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