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Lymphangioleiomyomatosis - Articles

Genetics Home Reference: lymphangioleiomyomatosis by nih.gov Posted Mon 19 Jul 2010 11:51am (also known as LAM) On this page: Description Genetic changes Inheritance Treatment Additional information Other names Glossary definitions Reviewed June 2010 What is LAM? Lymphangioleiomyomatosis (LAM) is a condition tha ... Read on »
PPS 09 Radiology-Pathology Correlation of Lung Disease by Mark Pool, MD Posted Tue 30 Jun 2009 12:00am Dr. Teri Franks and Dr. Jeff Galvin, both from the AFIP, delivered a very informative presentation on rad-path correlation of lung disease.  One very helpful approach is the connection between pathology and radiology patterns: Six pathology patterns of lung disease: Acute lung injury Fibrosis Cellular infiltrates ... Read on »
Feb 24 2011 Struggle for diagnosis-meds+self care by Roxlyn Facebook Posted Thu 24 Feb 2011 8:31pm The mystery - WHAT is happening to you?  Getting a diagnosis can sometimes take years,  you think you are only getting older andweaker…isn’t that natural?  Should you complain about it?   YES!  Every little change in your habits can bea clue for the doctor.   Finally gettingdiagnosed with a progressive lung disease(or any other disease)  is ... Read on »
LAM Awareness Day. by Live Life Then Give Life Patient Expert Posted Wed 01 Jun 2011 4:02am Today is Worldwide LAM awareness day. LAM stands for Lymphangioleiomyomatosis, and is an extremely rare disease which only affects women, and usually shows itself in women of child-bearing age. LAM primarily attacks the lungs, destroying lung tissue and leaving sufferers increasingly more breathless. The disease causes excessive growt ... Read on »
All systems a Go Go!! #clipperrace #doublelungs by Justine Posted Sat 19 May 2012 5:03am Countdown to Clipper 11-12 Well it has certainly been a roller-coaster towards the build up of my departure. I had intended the last month to be actively training in my specific sports entering in the British Transplant Games on my returns (and keep training 5 x week). However, a virus and then an infection wiped out all my energie ... Read on »
Inspiring times at the Transplant Games by Live Life Then Give Life Patient Expert Posted Fri 07 Aug 2009 11:02am We always get a bit excited every year about the British Transplant Games (run by the wonderful charity Transplant Sport UK ), for it's an inspirational show-case for the awesome power of organ donation. Staged annually since 1978, the Games allow those who once had debilitating illness to come together to celebrate their newfound health thanks ... Read on »
Team GB Go Go! and Bree by Justine Posted Mon 23 May 2011 1:23pm Transplantion is a gift, an extension on life. It is not a cure and complications/side effects from medications can occur. My life is one with a positive attitude through days which maybe harder than others. I live my life and love every day I wake up and still alive. Sometimes, my breathing may be an issue - but I keep going and get on with it ... Read on »
Mission 2011: Finding Social Support Through Social Media by Selena Facebook Posted Thu 20 Oct 2011 11:10am photo by crirez My Life Resembles a Commercial  Have you seen that commercial on TV with the young woman who is trying to get her parents connected on Facebook?  She comments that they only have 19 friends there; meanwhile her parents out mountain biking with their friends.  She, on the other hand, has 687 friend ... Read on »
August 29, 2008 rehabilitation at HOME works for those with COPD by Roxlyn Facebook Posted Mon 01 Sep 2008 7:09pm Music is a terrific help in keeping one moving...speaking of which, it is time to get on the treadmill. Walked intervals from 3 to 4.5 mph, very tough for 2 miles in 45:44 will do small weights tonight since I didn't get to them last night.roxlyngcd@comcast.net Chronic Obstructive Pulmonary Disease And Home Rehabilitation - The Mobile Ph ... Read on »
Transplant Drug May Fight Rare Lung Disorder by Ed H. Doctor of Pharmacy Posted Wed 16 Mar 2011 9:33pm An already approved transplant-rejection drug is the first treatment to show a benefit for women with a rare lung disease that has had no cure or, until now, even a treatment. The drug, sirolimus (Rapamycin), improved both lung function and quality of life in women with lymphangioleiomyomatosis, or LAM, according to a study published online ... Read on »

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