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Hemolytic Uremic Syndrome - Articles

FDA approves Soliris (Eculizumab) for atypical HUS by Kamal S. Patient ExpertHealth Maven Posted Sat 24 Sep 2011 9:24am In a significant development the FDA in the USA approved Soliris ( Eculizumab ) for use in atypical Hemolytic Uremic Syndrome . To those saying, "Huh?": Read on! Atypical Hemolytic Uremic Syndrome (aHUS) is a rare disease that afflicts mainly children and a few adults. It causes kidney failure in a lot of cases. I have that disease and it ... Read on »
The little boy with atypical HUS by Kamal S. Patient ExpertHealth Maven Posted Tue 02 Mar 2010 4:58pm I got a call one evening. "Is this Kamal?" "Yes. Who is this?" "This is Rajesh. My nephew is a three year old boy and has been diagnosed with HUS." At that instant, a flood of emotions went through me. HUS. Hemolytic Uremic Syndrome. Where the body's defense mechanism against foreign bodies goes bonkers and star ... Read on »
Atypical HUS Patient conference at Newcastle by Kamal S. Patient ExpertHealth Maven Posted Tue 22 Mar 2011 9:05pm The Center for Life at Newcastle upon Tyne, UK, is organizing a conference for patients and their family on atypical Hemolytic Uremic Syndrome on Saturday, June 11th. This is a great initiative by Dr. Tim H. Goodship, whose lab found out that I had the CFH/CFHR1 hybrid gene due to which my kidneys failed and my transplant did not work out. D ... Read on »
Plasmapheresis versus Eculizumab versus Status Quo by Kamal S. Patient ExpertHealth Maven Posted Sat 09 Jul 2011 1:14pm So, I have this rare disease called Atypical Hemolytic Uremic Syndrome (aHUS). There are probably a handful of adults in the world that have it. In this disease there is uncontrolled activation of the alternate complement pathway (alternate mechanism of protecting the body against foreign invasions, so to speak). It has been proved that I have ... Read on »
Microangiopathic hemolytic anemia by pathologystudent Posted Fri 31 Jul 2009 11:55am We’ve talked about a whole bunch of different hemolytic anemias over the past few weeks. We’ve gone through the main hereditary hemolytic anemias: hereditary spherocytosis (and its less-common counterpart, hereditary elliptocytosis ), glucose-6-phosphate dehydrogenase deficiency, the hemoglobinopathies (like sickle cell anemia) and the thalas ... Read on »
Are HUS and TTP related? by pathologystudent Posted Mon 29 Nov 2010 8:33am Q. Is there a relationship between hemolytic-uremic syndrome and thrombotic thrombocytopenic purpura? I see them lumped together a lot. Also, what does it mean to treat an HUS patient supportively? A. Yes, there is a relationship between HUS and TTP. In both disorders, there is widespread small vessel thrombosis. Some of the symptoms of ... Read on »
FDA, CDC, and Costco warn consumers to avoid Bravo Farms Dutch Style Gouda cheese by FDA Posted Thu 04 Nov 2010 7:15pm   For Immediate Release: Nov. 4, 2010 Media Inquiries: Siobhan DeLancey, 301-796-4668,  siobhan.delancey@fda.hhs.gov Consumer Inquiries: 888-INFO-FDA   Raw milk cheese may be related to outbreak of  E. coli infections   Fast Facts Bravo Farms Dutch Style Gouda cheese, (Costco item 40654) offered for sa ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
The call by Kamal S. Patient ExpertHealth Maven Posted Sun 24 Aug 2008 2:57pm It was midnight last night when my cell phone rang. I had fallen asleep about half an hour back while waiting for my tech, Jairam to come and start dialysis. We've changed the cannulation sites and so he's been doing the cannulation for a few days now. I had called him around 10:30 and he said he would be late because he was caught up in ... Read on »
Transplant decision revisited by Kamal S. Patient ExpertHealth Maven Posted Thu 07 May 2009 7:53pm An old friend recently got in touch with me. He is now a doctor in the US. He got to know about my renal condition and we discussed my long term plans. He asked me about a second transplant. I told him about my decision to not go for another transplant for now. He thought I should give it a shot especially since I am young. He felt the quality ... Read on »