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Hailey Hailey Disease - Articles

Genetics Home Reference: benign chronic pemphigus by Posted Thu 30 May 2013 4:33pm On this page: Description Genetic changes Inheritance Diagnosis Additional information Other names Glossary definitions Reviewed May 2013 What is benign chronic pemphigus? Benign chronic pemphigus, often called Hailey-Hailey disease, is a ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
More on Hailey Kent and her battle with Leukemia by Sharon LaMothe Healthy Living ProfessionalHealth MavenFacebook Posted Tue 21 Oct 2008 12:20am   Photo by Dana Rene Bowler Hailey Joy Kent was diagnosed with a rare form of leukemia when she was about 3 months old. She underwent a stem cell transplant to help fight the disease; there is always the chance of a relapse. I wanted to add more information for those of you following the Hailey Kent story I posted on May 30th. You ... Read on »
Hailey Kent and her battle with Leukemia by Sharon LaMothe Healthy Living ProfessionalHealth MavenFacebook Posted Tue 21 Oct 2008 12:20am I was asked to post this...if you would like any other information, please visit the SMO website using the link below. Thank you Sharon You may have read about little Hailey Kent and her battle with Leukemia on Surrogate Mothers Onlinehttp://www.SurroMom There are links on ... Read on »
INTRODUCING...HAILEY!!!! by Jodi Cutler Del Dottore Patient ExpertHealth Maven Posted Tue 26 Aug 2008 11:40pm Selena and Hailey, please accept my most heartfelt thank you for sharing yourselves and your story with anyone reading this blog. The beginning of this video is very emotional for me because I know how frustrating it is for Jordan to try to communicate without his processor on...he can't hear, so processing a verbal message is more difficult. See ... Read on »
A cure for Hailey by Kymberli Patient Expert Posted Sun 11 Jan 2009 5:45pm Rick and Maria became parents through gestational surrogacy to their twins Ryan and Hailey. On SMO we have held them up in prayer, as little Hailey was diagnosed with Leukemia at a mere 15 weeks old. Now, her best chance for a cure is a sibling. Surrogacy is needed again, both to give life to new life and to grant life to a life already born. T ... Read on »
Indescribable horror turned into advocacy by Jason Schwartz, LMSW Healthy Living ProfessionalHealth Maven Posted Fri 05 Jul 2013 8:00pm Bill White appears to have started blogging! His most recent post touches upon an issue that is close to my heart. People in recovery and their family members are leading what is rapidly becoming an international recovery advocacy movement, but there are faces and voices notably absent from the frontlines of this movement:  the famil ... Read on »
Podcast Alert! by Jason Schwartz, LMSW Healthy Living ProfessionalHealth Maven Posted Mon 30 Sep 2013 11:45am We got a message from our friend Mark at the Recovered podcast  that he will be podcasting with his wife on the topic of Grief and Recovery.  Their oldest son died July 2, 2012 and they have been dealing with this topic since. This topic is near and dear to my heart. Below is a repost of a recent post that featured Mark and others who have ... Read on »
I Can’t Stress the Importance of Good Neck Posture Enough! by Nav J. Patient ExpertHealth MavenFacebook Posted Fri 05 Feb 2010 12:00am Good posture in the neck means that our neck bones inside of us are in good alignment; and that means the nerves are free from any unwanted pressure. All of this equals a body functioning at its best and without health problems like neck pain, headaches, or something worse. Here is a list of the cervical nerves and what they control: ... Read on »
The Memory Game by Life With Shaky Patient Expert Posted Wed 14 Jan 2009 8:54pm I have taken the past few days to mull over an incident that happened Saturday evening before posting about it. This one incident has raised several other issues, and I really just needed the time to understand myself how I felt about everything. After Hailey's basketball practice on Saturday I dropped him off with W, his stepmother, for t ... Read on »