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Goldenhar Syndrome - Articles

The joys of Goldenhar by Val B. Patient Expert Posted Wed 02 Jan 2013 2:20pm According to the latest data (collected by me today) Brooklyn has 24 teeth, which is probably normal, she is now nine years old. Gage on the other hand has a total of 19. There are a couple of more that will likely come through but at this point I don't see past 21 teeth in his near future and the ones he does have, aren't actually full healthy t ... Read on »
Genetics Home Reference: craniofacial microsomia by Posted Tue 27 Mar 2012 4:42pm On this page: Description Genetic changes Inheritance Diagnosis Additional information Other names Glossary definitions Reviewed March 2012 What is craniofacial microsomia? Craniofacial microsomia is a term used to describe ... Read on »
Goldenhar Boy by Val B. Patient Expert Posted Fri 22 Mar 2013 12:15pm So I was lying on the O.R. table (it was actually more like a doctor's office-I had no anesthesia) trying to think of anything to say to drown out that LOUD snipping as the surgeon removed skin and tissue deep within my foot (another skin cancer). I blurted out (in a voice that was a little too loud for the awkward quiet) "So where did my other d ... Read on »
CAUSES OF HEARING LOSS AND AUDITORY NEUROPATHY...VIDEO ON CUED SPEECH by Jodi Cutler Del Dottore Patient ExpertHealth Maven Posted Tue 26 Aug 2008 11:40pm Causes of Deafness (lifted from Jamie Berke, strong, passionate, intelligent voice, check out her blog!) What Makes People Deaf Acoustic Neurinoma Basic facts on acoustic neurinoma, a lesser known cause of hearing loss. Autoimmune Inner Ear Disease (AIED) Autoimmune Inner Ear Disease is examined in this fe ... Read on »
Choosing the Right Surgeon for Microtia Reconstruction by Hpcsurgery Facebook Posted Thu 19 Jul 2012 7:32am There are many plastic surgeons that perform microtia reconstruction in the US. If you want to make sure that you don’t end up going for a secondary microtia surgery, a competent surgeon should be chosen for microtia reconstruction. What Specialists Can the Child be Taken to? -Neonatologist A pediatrician or a neonatologist can help in e ... Read on »
Find the Right Surgeon to Correct the Microtia Problem by Hpcsurgery Facebook Posted Tue 25 Jun 2013 10:21am Microtia is a congenital malformation in which the pinna of the ear does not develop fully. The true cause of microtia is unknown. The good thing is that this condition is completely treatable and the child can lead a normal life. Ear reconstruction surgery for microtia can be performed at any time after the child is large enough to allow suf ... Read on »
Study Day by Val B. Patient Expert Posted Sun 03 Nov 2013 4:53pm  Back at the first of the year, as my Dermatologist removed the cancerous tumor on my foot, we discussed my children. She was very interested in the oldest child's Goldenhar Syndrome. She had heard of it, but never seen a person who had been diagnosed to her she asked us to participate in a large event held there each Nove ... Read on »
The Genes We Wear.... by Val B. Patient Expert Posted Sun 31 May 2009 2:57pm “What doe s it sound like to take a bath?” This is just one of many questions I’ve been asked since becoming a parent to deaf children. I had to frantically search my mental thesaurus to describe to my children how the water sounds to me but feels to them. By day, they wear cochlear implants, electronic devices where one part is surgically impla ... Read on »
Mandibular Distraction Surgery in Houston by Hpcsurgery Facebook Posted Tue 07 Aug 2012 5:10am Each portion of the face is important with regard to the overall facial appearance. Any oddity in facial appearance may have a negative impact on one’s self confidence.  A bent nose, tired eyelids, deep nasolabial folds, wrinkled forehead and protruding ears can each play its part in making one look less than handsome or beautiful. Some factors s ... Read on »
Rewards by Val B. Patient Expert Posted Tue 30 Jun 2009 4:17pm Ahhh, yes they got the reward (that was suppose to happen last week but the migraine rerouted us). I can never say our appointments are stress free, but as long as they behave (no fighting!!!, no inappropriate words, stay right with me) I call it a success. We visited our ci surgeon today and Gage had this follow up already scheduled with ... Read on »