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Eagle Syndrome - Articles

Eagle Scout with Down Syndrome by Qadoshyah Posted Fri 09 Sep 2011 10:00am A family on the Einstein-Syndrome list has a son with Down syndrome who has been working on an Eagle Scout project. He recently completed his project, so some newspapers shared his story. I thought I would share it as well. Eagle Scout Project for Sotterley Receiving the distinction of Eagle Scout requires strong motivation, wi ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
Giant Eagle 5150 by Brent Poulsen Posted Thu 01 Aug 2013 12:00am Giant Eagle 5150 This past Sunday I raced Giant Eagle 5150 in Colombus, OH. I ended up 9th in the Pro race.  I knew I would be rusty but I didn’t know to what extent. My Homestays Kelly and Dave made my trip very enjoyable and it was very exciting as we all raced. My coach and I are very confident that in the next few races ... Read on »
31 for 21: Team Makes Play for Down Syndrome Awareness by Qadoshyah Posted Thu 06 Oct 2011 11:30am Team Makes Play for Down Syndrome Awareness Month It was the fourth quarter and the Plainedge Bobcats football team was facing off against the Bethpage Eagles at John H. West Elementary School when 12-year-old Michael DiMarco ran the ball in for an 8-0 victory on Sunday. While this scene could have played out in any peewee football ma ... Read on »
RARE gives voice to people with Down syndrome by Louise Posted Thu 28 Jun 2012 11:02am   Canadian playwright Judith Thompson’s RARE debuts on July 5 as part of the Toronto Fringe Festival. The play stars nine adult actors with Down syndrome. Through a montage of monologues, members of the ensemble tell their stories in their own words. While Judith helped to curate and fine-tune their work, the play was mostly written by ... Read on »
Exercises for carpel tunnel syndrome by Kris K. Patient Expert Posted Mon 25 Aug 2008 7:05pm If you suffer from carpel tunnel in the wrists, Yoga can be a blessing or a curse. Avoid hand balances and keep the base of the wrist lifted in poses such as downward facing dog (adho mukha svanasana) . If it's not possible to lift the wrist base, then just keep the hands off the floor--no, not a down dog with no hands! ... Read on »
Health Headlines - August 1 by Meredy Registered NurseHealth Maven Posted Thu 23 Oct 2008 2:24pm North Dakota Hospital Adds Meditation Room Sherman Iron Shield used to sneak his son behind some elevators at St. Alexius Medical Center so he could burn sacred herbs to chase away evil spirits without setting off the hospital's fire alarms and sprinklers. He believes the practice, known as smudging, along with modern medicine, helped hi ... Read on »
an interesting lecture by Nancy Minshew by Jonathan Mitchel Patient Expert Posted Thu 09 Apr 2009 7:16pm Today I attended a rather interesting lecture by autism researcher Nancy Minshew. Dr. Minshew is a professor of psychiatry and neurology at the University of Pittsburgh and is one of the people currently doing research into the neurophysiology of autism. She talked about autism being "synapseopathy". I guess that might mean lack of connections betw ... Read on »
Multidisciplinary team of e ... by Dr. Rubens D. Medical Doctor Posted Tue 16 Mar 2010 1:11pm Multidisciplinary team of experts weighs in on diagnosis and management 16 mar 2010--When actor John Ritter died suddenly in 2003 from a tear in his thoracic aorta—the large artery that carries blood from the heart to the rest of the body—that tragedy brought attention to a rare but deadly condition that takes the lives of an estimated ... Read on »
It's long, but worth the read :) by meredith Patient Expert Posted Fri 04 Sep 2009 10:43pm Mike and I both just enjoyed this read. What true compassion... and a well written story :) Here's the original source St. Louis Cardinals fan feels uplifted after fall AUG. 7, 2009 -- Pittsburgh Pirates first base coach Perry Hill (8) and Cardinals first baseman Albert Pujols (left) come to the aid of a fan who tried to retriev ... Read on »