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Cystic Fibrosis Foundations And Support Groups - Articles

Top Ten Reasons to Support the Cystic Fibrosis Foundation by Lauren B. Patient Expert Posted Sun 24 Aug 2008 6:59pm 1 Comment of Foundation support. Since the 1980s, the Foundation has played an integral role in the development of Pulmozyme(r), TOBI (r) azithromycin and hypertonic saline for use as CF treatments... the Foundation was established, children born with CF were not expected to live long enough to attend elementary school. Thanks to research and care supported by the Foundation, the median Read on »
Help Me In Supporting Kevin Kennedy-Spaien And Disc Of Light Media’s Cystic Fibrosis Foundation Fundraiser by Jimmy M. Healthy Living Professional Posted Wed 11 Nov 2009 10:00pm on to benefit The Cystic Fibrosis Foundation. A family friend of theirs has two children who have been stricken with cystic fibrosis and so this is a subject matter that is near and dear... will result in a very generous $5 donation directly to the Cystic Fibrosis Foundation. What a perfect Christmas gift for just about ANYONE on your shopping list who could stand Read on »
Student Support for Cystic Fibrosis Charity Dropped Because Disease is too "White" by Wesley J. Smith Patient Expert Posted Tue 23 Dec 2008 9:14pm supporting cystic fibrosis charities because the disease is not diverse enough. I kid you not. From the story: The Carleton University Students' Association has voted to drop a cystic fibrosis charity as the beneficiary of its annual Shinearama fundraiser, supporting a motion that argued the disease is not "inclusive" enough. Cystic fibrosis "has been Read on »
MS Foundation based Support Groups, within the USA by stuart Patient Expert Posted Tue 17 Nov 2009 10:20pm MS FoundationSupport Groups http://www.msfocus.org/support-groups.aspx MS support groups provide people with MS and their families an opportunity to share their MS experiences with those who can understand and identify with them. Support group meetings are designed to be educational, fun, and positive. The MSF has a network of more than 100 Read on »
Member of the Myotonic Dystrophy Foundation Community Support Group by Lisa Harvey Vittek Posted Thu 13 Aug 2009 7:59pm If you are looking for support for myotonic dystrophy or congenital myotonic dystrophy, join our online community at: www.community.myotonic.org . Read on »
"Beauty" Pageant to Benefit the Cystic Fibrosis Foundation by Nathan L. Patient Expert Posted Tue 03 Mar 2009 2:10pm Our great CF Team friends up around Elizabeth City, NC are putting on a creative fund-raiser for their upcoming Great Strides Walk for Cystic Fibrosis. If you are interested in attending or helping out with this event, please use the contact information on the flyer (click the flier to zoom in)! Thanks! Nate Read on »
Wonderful Progress from the Cystic Fibrosis Foundation by Lauren B. Patient Expert Posted Sun 24 Aug 2008 6:59pm The Cystic Fibrosis Foundation just published the following press release: We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis. The Cystic Fibrosis Foundation played a hand Read on »
$250k Grant for the Cystic Fibrosis Foundation by Nathan L. Patient Expert Posted Mon 04 Oct 2010 7:31pm The Cystic Fibrosis Foundation is the leading vote-getter for a $250k grant from Pepsi! Read about what the money would be used for and vote for the CFF HERE ! Voting continues through the end of October, and there are 30,000 people in the US who could use your help! Nate Read on »
In Support of Support Groups by Joan .. Patient Expert Posted Tue 26 Aug 2008 12:59pm group in Bowie-Crofton (Maryland) that has been a very successful support group for about 20 years. It was (and still is) a large group with a newsletter, lending library, interesting guest speakers, holiday parties, and nice people to talk to. I found comfort and support from that group, and was introduced to organizations and local resources Read on »
Second look: On when support groups support by Larry Drain Healthy Living Professional Posted Wed 30 Dec 2009 12:21am group or support system doesn’t work just because there are a lot of people involved.  They work when the person seeking support emotionally buys into them.  A group... support to you.  To believe that a group offers genuinine support for you there are 4 things you must come to believe: You must believe there is something in it for you Read on »