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Cystic Fibrosis-f508 - Articles

Guest Blog by CysticLady: Update on CysticGal by CysticGal Patient Expert Posted Thu 15 Oct 2009 10:04pm CysticGal went into the hospital on Monday.  Yesterday's ABG showed very high pCO2, or carbon dioxide level.  They made arrangements for her to be on BiPAP at least when sleeping. This morning, CysticGal had a heart catheterization, as part of her transplant workup.  I think she did well during the procedure.  Afterward you have to lay down still ... Read on »
Guest Blog by CysticLady: Update on CysticGal II by CysticGal Patient Expert Posted Mon 19 Oct 2009 10:07pm Tonight I got calls from CysticDad and CysticMommy saying that they are moving CysticGal to the ICU.  She's just not breathing very well.  She had some Solu-Medrol® at 6:00 PM.  I hope that helps her a lot, it helped me a lot when I was in the same situation.  Hopefully she will do better with the kind of one-on-one care that you receive in the uni ... Read on »
Guest Blog by CysticLady: Update on CysticGal III by CysticGal Patient Expert Posted Mon 26 Oct 2009 11:07pm I just got off the phone with CysticGal.  She wanted me to post an update.  I will also try to explain what happened last week that led up to her stay in ICU.  We were all very worried, especially her, and at the time I wasn't sure what I should and shouldn't write based on my speculations of what was happening from nearly 1,000 miles away. I'm go ... Read on »
CysticGal and CysticLady: Twinsies of Evening Wear by CysticGal Patient Expert Posted Sun 01 Nov 2009 10:02pm I bet you all wonder what CysticGal and CysticLadydo with all their evening time . . .Well, here it is! Glamorous!CysticGal, toweley at the hospital. CysticLady, toweley at home.Goodnight! Spend your bloggy time tonight exploring other parts of the blog- perhaps the archive, or the labels section, or get on twitter. Everybody's doin' it!Love, CG Read on »
Holy Canoli Cystic Gal is the Backup: By Cystic Lady by CysticGal Patient Expert Posted Tue 01 Jun 2010 8:44pm Tonight at 6:36 PM Cystic Gal was called by Brigham & Women's as the backup for lung transplant.  She was called into the hospital soon after and is accompanied by a friend, waiting to see if 1) the surgery is a go, and 2) the first person in line is not able to have the surgery.  It's hard to say how it will turn out, but please send Cystic Gal ... Read on »
Finger Clubbing in Cystic Fibrosis by Lauren B. Patient Expert Posted Mon 25 Aug 2008 7:27pm One of the prevailing physical signs of cystic fibrosis is noticeable digital clubbing. Digital clubbing is a condition in which the tips of fingers or toes have an unusually large amount of excess tissue. This results in the nail bed taking on a curved appearance. This rounding of the fingertips is easily recognized by viewing the fingers f ... Read on »
Gall Bladder Issues in Cystic Fibrosis by Lauren B. Patient Expert Posted Mon 25 Aug 2008 7:27pm The gall bladder is a small, pear-shaped organ that connects to the liver by a series of ducts. As part of the digestive system, the gallbladder’s role is to store bile (a bitter liquid produced by the liver) that will be used to digest food, particularly fat, on its way to the small intestine. Nearly every cystic fibrosis (CF) p ... Read on »
Signs & Symptoms of Cystic Fibrosis by Well Med Posted Sun 24 Aug 2008 4:41pm 1 Comment Here is a list of some of the common signs and symptoms of Cystic Fibrosis: Abdominal bloating Abnormal exocrine glands Absence of sperm in ejaculate due to obstruction Airway obstruction Biliary cirrhosis Bronchiectasis Bulky bowel movements Bulky foul-smelling stool Bulky foul-smelling stools Chronic Burkholderia ce ... Read on »
Understanding Cystic Fibrosis Associated Arthritis by Lauren B. Patient Expert Posted Sun 24 Aug 2008 7:19pm As cystic fibrosis patients are surviving longer into their adult years and “middle age,” some may find themselves experiencing episodes of arthritis. Although cystic fibrosis associated arthritis has been observed to affect only 5-10% of the cystic fibrosis population, there’s no denying it happens. Aches and pains of the joints ... Read on »
Newborn Screening for Cystic Fibrosis Offers Hope by Lauren B. Patient Expert Posted Wed 27 Aug 2008 8:33am Imagine how difficult it would be as a parent, to take your sick child from doctor to doctor, and none knew what was wrong. The doctors seem to think your baby is merely battling a stubborn cold, or has food allergies of some sort. You know that can’t be the correct diagnosis, so you exhaust yourself searching websites that describe your little o ... Read on »