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Cri Du Chat Syndrome - Articles

Recent autism abstracts in Pubmed by Kev Leitch Healthy Living ProfessionalHealth Maven Posted Thu 16 Dec 2010 2:35pm Pubmed is an amazing resource. It is a Public Medical library of abstracts (and some articles) in the medical literature. I have a search set up so that I get emails with recent articles with the subject “autism”. I try to obtain some of the articles and discuss them here. This is not based on what I perceive to be the “best” or “most imp ... Read on »
Another Failure by Ashley's Mom Patient Expert Posted Sat 13 Jun 2009 12:24am On October 7th, I wrote about a young girl who had been failed by both the system and, in my opinion, her family. That same day, the following story of a mother, overwhelmed with the events of her life, took both the lives of her children and herself. Suicide Haunts A Kentucky Family This mother has also been failed by the system. On ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
Social Security Disability ‘Compassionate Allowance’ – Only For Those Who are Impoverished? by Chris H. Posted Fri 05 Mar 2010 6:13pm Today I called the Social Security Office in Nevada to find out about the compassionate allowance program for our twins. Last month, the Social Security Administration added 38 more conditions to the already 50 rare diseases and cancers designated for compassionate allowance, which provides exp ... Read on »
Doctors...what do they know? by tsquared417 Posted Mon 05 Oct 2009 10:02pm Mr. and Mrs. T, I have some bad news. Your daughter has Cri du Chat syndrome. She'll have severe mental retardation. There is no spectrum with this syndrome...they're all severe. She won't walk or talk or read or write. It will be so much work to take care of her, you'll need to quit your job. She'll basically be a ve ... Read on »
A Little Advice by tsquared417 Posted Thu 13 Aug 2009 7:55pm To all of people at the pool/zoo/grocery store/library...please listen. When you see my daughter, I only want you to see how amazing and beautiful she is. Therefore, if you think she looks "different" or like she "has something", please don't ask me "what she has". OK? I may cut you if you do. At the very least I will give you a very dir ... Read on »
If only I'd known then.... by tsquared417 Posted Sun 04 Oct 2009 11:13pm When you were born, Olivia, I was scared. I'm not going to lie; I was terrified. I had never had any experience with anyone who had a disability...I didn't know what to expect. If only I'd known then that... you would be the most popular girl in school (in a good way) because, as a 5th grade girl I met at the park the other day told me, "she ... Read on »
It's Official...I love blogging by tsquared417 Posted Wed 17 Feb 2010 12:00am It's Official...I love blogging. I started this blog because my friend Allison said I should. Really. That's why I started...a friend said I should. I didn't start blogging because I thought I was a really talented writer...or because I thought I was funny...or because I took really great pictures...or because I had wonderful recipes. Al ... Read on »
syndrom de l'aliénation du parent ou implacablement parent hostile by doudoumoncler Posted Fri 30 Nov 2012 4:24am Svaki u.enik izlo.io les je 4 font 5 radova du svojih, un napredni i vi.e. Prevladavaju ulja na platnu uz ne.to ulja na staklu. Tout a été tiré ensemble SEULEMENT À TEMPS! moncler homme Tout doudoune moncler le monde est resté beau, beau et sec. La toile de fond a servi comme une belle origine pour la cérémonie et photos. C'est aussi vrai d'apnée ... Read on »
Stomach and Duodenal Ulcers by Dr. Anshu Gupta Patient Expert Posted Tue 02 Jun 2009 4:40pm 1) What Is an Ulcer? During normal digestion, food moves from the mouth down the esophagus into the stomach. The stomach produces hydrochloric acid and an enzyme called pepsin to digest the food. From the stomach, food passes into the upper part of the small intestine, called the duodenum, where digestion and nutrient absorption ... Read on »