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Reuters Article: Congenital CMV by Lisa Posted Thu 11 Jun 2009 8:11pm Reuters recently published an article about the #1 viral cause of birth defects, congenital CMV (cytomegalovirus). See "Mom's infection raises risk of infant hearing loss" at http://www.reuters.com/article/healthNews/idUSTRE4BM4RV20081223 I am the mother of a daughter disabled by congenital CMV. I was never warned how to prevent contracting Read on »
Worldwide CMV Links for parents by Lisa Posted Thu 11 Jun 2009 8:11pm =Inquiry or congenitalcmv.association@ntlworld.com European Congenital Cytomegalovirus Initiative: The European Congenital CMV Initiative (E.C.C.I.) is a network of professionals based throughout Europe with a united interest in congenital cytomegalovirus (CMV) infection. The group is composed of virologists, epidemiologists, immunologists, obstetricians Read on »
CDC Releases CMV E-Cards by Lisa Posted Thu 11 Jun 2009 8:11pm This link has CMV prevention e-cards to send to your friends plus podcasts to listen to: http://www.cdc.gov/Features/Cytomegalovirus/ Read on »
Drug-resistant CMV Infection by Matt S. Posted Mon 09 Jun 2008 12:00am CMV (cytomegalovirus) infection is quite common in the transplant population, and fortuantely the development and utilization of valganciclovir (Valcyte), an oral prodrug of ganciclovir, as a prophylactic agent has dramatically cut down on the number of CMV infections in the transplant population. However, CMV infections certainly can and do occur Read on »
CMV Parents: Send Letter to the Media by Lisa Posted Wed 23 Sep 2009 11:25pm links to CMV sources such as STOP CMV and the articles I quote. Dear [name of producer/editor] [Mention how you found out about them.] Congenital CMV (cytomegalovirus) causes... disabilities caused by CMV (See: www.cdc.gov/cmv ). According a 2006 survey reported in the article, "Knowledge and Awareness of Congenital Cytomegalovirus Among Women," of the 643 Read on »
4/10 Lecture: Stop CMV--#1 Birth Defects Virus by Lisa Posted Thu 25 Mar 2010 3:48am : Free Few women have heard of congenital CMV (cytomegalovirus), which causes more disabilities than Down syndrome, and more than half of OB/GYNs surveyed admitted they don't warn... or wearing hearing aids, and asked, ‘Why didn’t my OB/GYN warn me how to protect my baby from CMV?’” In the article, “Washing our hands of the congenital cytomegalovirus disease Read on »
Dr, Gail Demmler Responds to CMV Awareness Question by Lisa Posted Thu 11 Jun 2009 8:11pm times. It is an interesting concept for CMV Awareness because each year babies and children and adults who were born with congenital CMV die from complications of their congenital infection. 2. There are many reasons why I feel CMV Awareness initiatives from the lay population, especially parents and families may be key to conquering CMV. They include1. Since Read on »
June Designated Congenital CMV Awareness Month by Lisa Posted Sun 06 Jun 2010 5:51am Awareness Month Public can prevent #1 birth defects virus--more common than Down syndrome Suffern, NY--June has been designated National Congenital CMV (cytomegalovirus... for Disease and Prevention (CDC) on June 29. According to the CDC ( www.cdc.gov/cmv ). • Every hour, congenital CMV (cytomegalovirus) causes one child to become disabled • Each year Read on »
Lend a Hand for CMV Awareness by Kelly S. Posted Tue 06 Apr 2010 8:23am There has been a lot of buzz this past month in the CMV online community! A push for awareness and support – especially in the UK – has been going on, the Brendan B... “National Congenital CMV Awareness Month.” WOW! As a mom with a CMV baby, this is uplifting. Nothing will ever reverse Danny’s getting sick, but this movement gives me hope Read on »
Visit Congenital CMV Foundation by Lisa Posted Thu 11 Jun 2009 8:11pm Home About Congenital CMV Donate For Professionals For the Public Contact Us Join our mailing list - stay up to date on news about Congenital CMV Save the Date! The Congenital CMV Foundation is sponsoring the 2008 Congenital CMV Conference on November 5 -7, 2008 (CCC ’08) at the Centers for Disease Control (CDC) Harkin Global Communications Center Read on »