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Chronic Fatigue Syndrome Cfids And Support From Friends And Family - Articles

Starting to Understand CFS / Chronic Fatigue Syndrome by Sophie Meredith Posted Sat 07 Nov 2009 10:20pm From Weighed Down by Sophie Meredith She tells me to just get started. I protest that I want to write something interesting and engaging but honestly, when I feel well enough to consider that, I forget what it actually feels like to be down under the grimy covers of ME / CFIDS / CFS. Now, I am peering through one ey ... Read on »
Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale by Vincent Racaniello Posted Wed 23 Nov 2011 12:00am by David Tuller Note: This account draws from interviews, a close reading of a fraction of the 4608 epidemiologic studies that pop up (as of today; yesterday it was 4606) on a PubMed search for “chronic fatigue syndrome,” and a review of many pages of government documents–in particular the minutes and testimony from meetings of the Chronic ... Read on »
How "Chronic Fatigue Syndrome" Obscures A Serious Illness by Erica Verrillo Posted Wed 29 Jan 2014 2:23pm David Tuller was a reporter and editor for ten years at the San Francisco Chronicle. He served as health editor at Salon.com and frequently writes health stories for the New York Times. He received his masters in public health at Berkeley in 2005. Reprinted with the kind permission of David Tuller. This article was originally published on ... Read on »
A warning on 'CFS,' 'ICD-CFS' and 'ME/CFS' research and advocacy, By Jodi Bassett and co-authored/ edited by Lesley Ben by Andrea P. Patient Expert Posted Tue 28 Apr 2009 11:25am I have decided to post the newest paper written by Jodi Bassett from A Hummingbirds Guide to Myalgic Encephalomyelitis (www.ahummingbirdsguide.com). Although I agree in most part with the article, there are some areas I am personally unsure about, so I ask you to study the work carefully and use the information to form a clearer picture of what is ... Read on »
Understanding Chronic Fatigue Syndrome by Catherine Patient Expert Posted Wed 04 Nov 2009 10:01pm This is from CFIDS Association of America … Collected here are the top 10 most frequently provided answers to question number 22, “What is the one thing you’d like your family/friends to really understand about CFS?” Responses were limited to 100 characters, and some were stated using different words, but I’ve tried to capture the “essen ... Read on »
IOM Public Meeting, January 27, 2014: Part 3: Voice of the Patient, and ME/CFS Group Presentations by Erica Verrillo Posted Tue 04 Mar 2014 10:47am The second half of the IOM public meeting was dominated by patients and advocates, which meant presentations were intelligent, cogent, well-organized, and comprehensible. The patient groups had divided up their presentations so that each focused on a specific point, which was illustrated with slides, documented, and referenced. Unf ... Read on »
Understanding Chronic Fatigue Syndrome by Catherine Patient Expert Posted Wed 02 Sep 2009 6:34pm This is from CFIDS Association of America … Collected here are the top 10 most frequently provided answers to question number 22, “What is the one thing you’d like your family/friends to really understand about CFS?” Responses were limited to 100 characters, and some were stated using different words, but I’ve tried to capture the “essen ... Read on »
Homeopathy for Chronic Fatigue Syndrome by Naomi D. Patient Expert Posted Sun 11 Jan 2009 5:24pm I wrote this article for a Chronic Fatigue Syndrome website and when I came to email it to the editor, I found that her details were absent- gone - nada! Doh.... It must have happened in the change over from PC to Mac, when so many little details seemed to dissapear into the ether, never to be found again. The only solution I ... Read on »
IOM Public Meeting: Part 4: ME/CFS Patients Speak by Erica Verrillo Posted Sun 16 Mar 2014 11:03am The final segment of the IOM public meeting consisted of comments made by ME/CFS patients and their representatives. Each comment was allotted a total of three minutes, which was not nearly enough time to address patient concerns over the IOM's review. In spite of the time restriction, each comment expressed the dominant position of the ... Read on »
Young People with CFS: Speak Up About ME! by Sue J. Patient ExpertHealth Maven Posted Tue 22 Mar 2011 3:53pm If you or your children became ill with ME/CFS before the age of 21, this is for you! (If not, you can still help...) Denise, a good friend of mine who has two teen sons with severe ME/CFS, has come up with an amazing idea to build awareness of the impact of ME/CFS on kids, teens, and young adults.  Her awareness project now has several sp ... Read on »