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Cholesteatoma - Articles

Moving On by Ashley's Mom Patient Expert Posted Thu 16 Jun 2011 12:00am I knew this day was coming but I really hoped that it wouldn't. Ashley has LOTS of ear infections, and always has. Through the years, she has also developed cholesteatomas. Cholesteatomas are destructive and expanding growths consisting of keratinizing squamous epithelium in the middle ear and/or mastoid. They often occur with frequent ... Read on »
Not Again by Ashley's Mom Patient Expert Posted Fri 18 Oct 2013 12:00am Ashley visited the ENT (Ear/Nose/Throat) doctor yesterday. She is a regular visitor there, but still continues to have ear infection after ear infection. The doctor has said her eustachian tubes, which in most children begin to slant down as they grow, never slanted down. So whenever she is sick with a cold or allergies, we can count on an ea ... Read on »
The Tease... by Val B. Patient Expert Posted Tue 07 Dec 2010 2:17pm So we have a little tease on our hands...Gage's incision keeps taunting us, pretending it's gonna heal, and just when you think you've got it in the'll ooze (shudder). Again this morning, it did the same thing, so I alerted our favorite doctor and nurse who wanted to see G man. While waiting for our name to be called, this happened.... ... Read on »
Welcome to our Family by Ashley's Mom Patient Expert Posted Sat 13 Jun 2009 12:25am Ashley had surgery today – surgery to remove a cholesteatoma tumor between her ear and her brain. She’s had this same surgery three times before and it never gets easier for her or for me. But today was different. It did seem easier at least for me because I had help from a special and dear friend. I adopted Ashley when she was two y ... Read on »
Chronicles of an Extreme ENT II by Val B. Patient Expert Posted Thu 11 Jun 2009 3:26pm If you haven’t read the first chapter please click HERE and read that article first. Continuing our series on one of Alabama’s most beloved ENTs, Dr. Audie Woolley, we promised to give reason for the name, Extreme ENT…. We start with the question “How does one become an Extreme ENT?” Do you think it’s his ... Read on »
Esteem® Implantable Hearing System by Health & Human Services Posted Wed 19 May 2010 9:00pm This is a brief overview of information related to FDA’s approval to market this product. See the links below to the Summary of Safety and Effectiveness Data (SSED) and product labeling for more complete information on this product, its indications for use, and the basis for FDA’s approval. Product Name: Esteem® ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
Smartphone Otoscope: Diagnosing Middle Ear Disease at Home? by Bruce Friedman Patient Expert Posted Thu 19 Jul 2012 12:00am Smartphones are continuing to exert a broad impact on healthcare delivery. The latest twist that I have come across is the smartphone otoscope for parents who want assistance in the diagnosis of possible ear infections in their children (see: Now Your Smartphone Can Be Used To Diagnose Ear Infections At Home ). Below is an excerpt fr ... Read on »
Absolutely and Bologna by Tara Lakes Posted Tue 19 Nov 2013 12:00am My boy's surgery was a complete success which was an odd reason to find myself sobbing all the way home from the hospital, but there I was. He will hear and, more importantly, he will live, neither of which he would do were he left in his home country of Serbia.  I'm not being dramatic. The ENT confirmed that the cholesteatoma had already ea ... Read on »
Easier by Tara Lakes Posted Sun 17 Nov 2013 3:13pm Sometimes, I don't realize how hard things are until they get easier. And sometimes, I don't recognize they've gotten easier until they just have and I realize I have time to breathe again.  Such is the case with Bo. My last update on our lives with him was pretty raw and real and filled with angst. Since then, he's made some significant pro ... Read on »