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Two Ways to Help ME/CFS Treatment Move Forward by Sue J. Patient ExpertHealth Maven Posted Tue 02 Apr 2013 4:13pm On April 25-26, the U.S. Food & Drug Administration (FDA) will be holding its first-ever FDA Workshop on Drug Development for Chronic Fatigue Syndrome (CFS) and Myalgic Enchephalomyelitis (ME) in Bethesda, Maryland. This is our big opportunity to teach the FDA all about the severity and effects of ME/CFS and our urgent need for effective treatmen ... Read on »
cfs treatment guide, free may 10-12 by Erica Verrillo Posted Tue 07 May 2013 12:13pm Isolation is a terrible consequence of having an illness that is as misunderstood as ME/CFS. But isolation does not have to destroy us. Increasingly, I am encouraged by the spirit and optimism that I see in the CFS/ME community. In April nearly 4,000 people downloaded free copies of Chronic Fatigue Syndrome: A Treatment Guide, bringing the ... Read on »
Starting a New CFS Treatment Plan by Alyson Posted Wed 15 Jul 2009 8:07pm I started a new CFS treatment plan yesterday. It's the one by Dr. Rich Van Konynenburg that I mentioned in a previous post. The official name of the treatment is "Simplified Treatment Approach Based on the Glutathione Depletion- Methylation Cycle Block Pathogenesis Hypothesis for Chronic Fatigue Syndrome." There are some preliminary research result ... Read on »
free cfs/me treatment book by Erica Verrillo Posted Wed 16 Jan 2013 8:11am On January 19th and 20th, Amazon.com will be giving away free copies of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition. Dr. Charles Lapp calls this “the book every patient should have.” The book includes over 100 effective treatments, spanning the full range of pharmaceutical and complementary modalities, an in-depth discussion o ... Read on »
me/cfs treatment guide free on february 16th by Erica Verrillo Posted Fri 08 Feb 2013 5:59pm Please help me spread the word! So far, I've given away over 3,000 copies. I'd like to reach 5,000 this month. On February 16th, Amazon.com will be giving away free copies of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition. Dr. Charles Lapp, director of the Hunter-Hopkins Clinic, calls this “the book every patient should hav ... Read on »
New ME/CFS Treatment: Manual Physical Therapy by Sue J. Patient ExpertHealth Maven Posted Sun 03 Feb 2013 9:57am A series of articles was recently posted on the Research 1st website (a highly recommended source for the latest news in ME/CFS research) that prompted me to tell you a bit of what I know about an exciting new way to help even severely disabled ME/CFS patients. Dr. Peter Rowe, a well-respected pediatric CFS/OI expert at Johns Hopkins, has deve ... Read on »
CFS Treatment validated by my internist (Post 6) by Carlitos G. Patient Expert Posted Tue 02 Dec 2008 3:06am I just came to see Dr. Garcia Quintana in Barcelona to get a second opinion for the treatment I received from Kenny De Meirleir. The reasons for this were two. On one hand She is my doctor that has been treating me for the last year, and on the other hand I wanted an expert opinion to validate the treatment proposed. Her opinion was in ... Read on »
Norwegian Group Begins Ambitious Fundraiser for ME/CFS Treatment, Rituximab by Erica Verrillo Posted Fri 22 Mar 2013 12:18pm The Norwegian group, MEandYou , has begun fundraising for an ambitious study on the cancer drug, rituximab (trade name: Rituxan), for patients with ME/CFS.  Their goal is to raise 7 million kroner, or 1.2 million US dollars in three months to support a study headed by professor Olav Mella and Dr. Øystein Fluge at Haukeland University Hospi ... Read on »
SOME PATIENTS WITH ME/CFS RESPOND TO TREATMENT FOR CHRONIC LYME DISEASE by Joanne60 Posted Mon 10 Oct 2011 4:57am I have been wanting to update on the situation re XMRV but have been busy reading what has been unfolding which is so complex, I decided Ken Friedman's podcast gave a good summary but with so much more of interest. Earlier post here about Ken. (Partial/near complete?) Transcript of Ken Friedman's recent podcast on IACFS/ME conferenc ... Read on »
Will Chronic Fatigue Syndrome Ever Get A Name Change? “The Campaign for a Fair Name for CFS” by Catherine Patient Expert Posted Sat 11 Apr 2009 1:01am 4 Comments   picture at My fears A Name Change For Chronic Fatigue Syndrome — Will It Ever Happen? — by Catherine Morgan According to published research, CFS patients and researchers alike feel that the present name trivializes the serious nature of the disease by labeling it “fatigue” - a symptom that is shared by almost everyone at some po ... Read on »