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Causes Of Chiari Syndrome - Articles

Intro to Budd Chiari Syndrome #HAWMC by KMunoz28 Posted Wed 03 Apr 2013 12:08am I was diagnosed with Budd Chiari Syndrome and Prothrombin Gene Mutation (Factor II) in 2008.  BCS is a liver disease where blood clots form in the hepatic veins blocking the flow of blood from the liver to the heart.  1 in 100,000.  When the Budd Chiari was found so was my blood disorder that most likely caused the clots. As the blood flow ... Read on »
Friday 5: Me and Liver Disease by KMunoz28 Posted Fri 19 Jul 2013 10:50pm Liver Disease is a taboo subject to most people.  When I tell someone that I have a liver disease they usually think it is from drinking.  They they ask  if its from hepatitis.  No and nope.  When I tell them that I have Budd Chiari Syndrome they look at me like I am speaking Marshallese.  What is it?  How did I get it?  How to I cure it? Is ther ... Read on »
Friday Five: 5 questions I get asked about my liver disease. by KMunoz28 Posted Fri 18 Oct 2013 9:25am When people find out that I have a liver disease and I am on the liver transplant list the questions start rolling in.  Here are a few of the more common ones that people ask. How did you get it?   My Budd Chiari Syndrome was most likely caused by a hereditary blood disorder that I did not know I had. It causes my blood to clot easily.  It ju ... Read on »
Limited Resources #HAWMC by KMunoz28 Posted Thu 04 Apr 2013 11:18pm Day 4:Sharing Resources I wish I could say that there is somewhere to turn for someone who was recently diagnosed with Budd Chiari Syndrome.  When I was diagnosed all I wanted to do was find a blog or person who was also living with BCS.  Yes there are other sites that are very helpful.  But I wanted to know more than the causes and symptoms. ... Read on »
Im 1 in 100,000 by KMunoz28 Posted Tue 01 Mar 2011 1:13pm Yesterday was Rare Disease Day. Typical me to be a whole day behind. But for the record, I was so exhausted yesterday I was in bed by 9:30!! In 2008 I was diagnosed with Budd-Chiari Syndrome. I know what your thinking. Budd Chi…what? That’s the usual reaction I get. Followed by a "what the heck is that?" and a really curious look on people ... Read on »
Do Good: Support Kim, Organ Donation & Vital Alliance by Selena Facebook Posted Sun 07 Nov 2010 10:36pm Image via Wikipedia One of my Twitter friends is a courageous and wonderful woman named Kimberly ( @KMunoz28 ). She lives with a chronic and rare illness called Budd Chiari syndrome and one day she will need a liver transplant. To educate others about her illness, she has dedicated a web page to explaining this condition: What is Budd Chiari ... Read on »
30 Things About My Invisible Illness by KMunoz28 Posted Wed 12 Sep 2012 10:10am The illness I live with is:  Budd Chiari Syndrome(liver disease) and Prothrombin G20210A(blood disorder). I was diagnosed with it in the year:  I was diagnosed in 2008.  I was pregnant and the ultrasound showed that my liver and spleen were enlarged..  But I had symptoms since: 2004.  I was pregnant(sensing a routine here!) and had gone ... Read on »
No Joke by KMunoz28 Posted Wed 29 Sep 2010 3:23pm Just when I finally started sleeping again, I got hit by the insomnia monster.  I had been in bed since 12 but no luck sleeping.  So I gave in and reached for my phone.  My trusty late night companion.  I thought about finishing up one of the many unfinished posts I have.  But I was sucked into the black hole, other wise known as Twitter.  I got ... Read on »
Lonely no more by KMunoz28 Posted Fri 11 Nov 2011 9:47am The road though life with Liver Disease is a lonely one.  Or it was when I first found out that is what I was dealing with and started writing here.  I couldn't find any other people out there with Budd Chiari Syndrome.  Nothing more than medical reports and a few headlines.  I kept writing to get the thoughts out of my head, to keep my family up ... Read on »
Late night numbers by KMunoz28 Posted Thu 10 Jun 2010 11:51pm So its going on 2am I'm up still. Looking at The Organ Procurement and Transplantation Network (OPTN) again.  Heres the numbers tonight. In Region 4 (Texas and Oklahoma) there are  1922 people waiting for a liver 855 are females 10 have Budd Chiari Syndrome 92 are between the age of 18 and 34 1,003 are type O blood 3 are P ... Read on »