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Beta Thalassemia - Articles
Thalassemia
by
pathologystudent
Posted
Fri 31 Jul 2009 11:55am
Next stop along our journey through the hereditary hemolytic anemias is a group of disorders called the thalassemias. Remember when we talked about sickle cell anemia? That disorder is part of a larger group of disorders called hemoglobinopathies, in which there is a qualitative abnormality in hemoglobin. Thalassemias are similar, in that the ...
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Health Headlines - September 24
by
Meredy

Posted
Thu 23 Oct 2008 2:24pm
Thalassemias
Thalassemias is the name for the group of genetic blood diseases which vary widely in severity.
As frightening as thalassemias can be, the outlook is encouraging. In the past 20 years, new therapies have greatly improved the quality of life and life expectancy in kids who are diagnosed with this disease.
What Is Thalass ...
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Thalassemia and Sickle Cell Disease
by
P.Allen Jones
Posted
Fri 07 Aug 2009 12:07pm
Picture this, you have Sickle Cell Disease (a disease of the red blood cell) and you marry a man who is diagnosed (at age 44) with Beta Thalassemia (also a disease of the red blood cell). Now you think to yourself; why didn’t this man know he had a blood disease?Often people who have Thalassemia don’t know they have it. Sometimes they’re told, “You ...
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Variations of Sickle Cell
by
Tosin Ola


Posted
Mon 08 Dec 2008 4:47am
Since sickle cell is a mutation of a strand of chromosomes, there are several different strains or variations. Here are the five most commonly documented:
Sickle cell trait: The person is carrying the defective gene, HbS, but also has some normal hemoglobin, HbA. Persons with sickle cell trait are usually without symptoms of the disease but hav ...
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Nicosan Testimonial
by
Tosin Ola


Posted
Tue 29 Sep 2009 10:02pm
One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also, if you would like to ask any questions about this, please leave a comment below or send m ...
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1st Annual Sickle Cell Warriors Cruise
by
Tosin Ola


Posted
Tue 27 Nov 2012 1:57am
Written by Sickle Cell Warrior on 26 November 2012
Hey everyone!
While Lakiea and I were at the Martin Center Banquet last September, we brainstormed a REALLY big idea. What if we could bring members of the sickle cell community together for an event, a weekend in which we are learning, ...
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Meet Natasha: Filmmaker, Musician, Survivor, Warrior
by
Tosin Ola


Posted
Sat 05 Jan 2013 2:39am
Written by Sickle Cell Warrior on 04 January 2013
Natasha is a determine, artistic, creative, spirited young lady, who has been through so much in her life. She has never given up and always found a way to get up even though the going was hard. She never has given up. There is so much to learn ...
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Is Your Disease on the RARE List™ – If So, More Bad News!
by
Chris H.
Posted
Mon 06 Feb 2012 3:01pm
I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™?
Last week, the R.A.R.E. Project and Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ...
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Chinese Study Suggests New Way to Test for Genetic Diseases
by
Medline Plus
Posted
Wed 08 Dec 2010 12:00pm
Method involves sampling fetal DNA present in mother's blood
By Robert Preidt
Wednesday, December 8, 2010
WEDNESDAY, Dec. 8 (HealthDay News) -- A new test that requires only a tiny sample of a mother's blood to scan the genome of a fetus may offer a safer alternative to current me ...
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