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Amyloidosis Treatment - Articles

Sudden Cardiac Death in Infiltrative Cardiomyopathies: Sarcoidosis, Scleroderma, Amyloidosis,... by Jan People's HealthBlogger Award Nominee By S. Lubitz, S. Goldbarg, D. MehtaSarcoidosis, scleroderma, amyloidosis, and hemachromatosis are systemic infiltrative disorders that commonly affect the heart. Owing to their potential for diffuse organ involvement, these diseases may present with myriad clinical manifestations. Conduction system abnormalities are common, and each of these disor ... Read on »
Fecal transmission of AA amyloidosis in the cheetah contributes to high incidence of disease by Terry S. Patient Expert Fecal transmission of AA amyloidosis in the cheetah contributes to high incidence of disease Beiru Zhang*†, Yumi Une‡, Xiaoying Fu*, Jingmin Yan*, FengXia Ge*, Junjie Yao*§, Jinko Sawashita*, Masayuki Mori*, Hiroshi Tomozawa¶, Fuyuki Kametani, and Keiichi Higuchi*‡** *Department of Aging Biology, Institute on Aging a ... Read on »
October 7, 2009 - Day 170 by dezwit ... e founders of Secure Harbor. In April of 2008, Tim was diagnosed (after several months of misdiagnoses) with Primary AL Cardiac Amyloidosis. Tim chose The Boston University Amyloidosis Treatment and Research Center as the facility he wanted to treat his condition. While in Boston, they saw for themselves the legendary cost and lack of housing av ... Read on »
August 24, 2009 - Day 126 by dezwit September 8, 2009 is the new launch date for the journey into the wild blue unknown of amyloidosis treatment. We met today with Dr. Schwarzberg to discuss the new regimen, how it will work, the possible side effects and what we hope to accomplish. I will be re ... Read on »
A few days after talc pleurodesis by Jim Allen ... er of waiting until they had a bed to put me in - took a couple hours.The bed they had for me was in the IU Hospital. Typical hospital room - I have been in plenty for Jill's amyloidosis treatment, stem cell transplant and ongoing treatment.Turns out that I was now in a wait and see process. Wait and see how much drainage comes from the chest tubes ... Read on »
Guilt by Dr. Kevin Recently I corresponded with a patient who was just diagnosed with amyloidosis. Her presentation was unusual (what amyloidosis patient isn't) But it struck me that she only had one organ involved and was not predominately kappa or lambda. Generally, primary amyloidosis is of one clone or the other. It turned out that she likely has familial amyloid ... Read on »
Progression from SMM to MM by Margaret Patient Expert A study published in The New England Journal of Medicine this month (the abstract can be read at: http://tinyurl.com/yweyh9) looks at the risk of progression from SMM (or smoldering or inactive or asymptomatic myeloma) to symptomatic MM or amyloidosis. Digression: have you ever had an amyloidosis test? I have, and I must say that I [...] Read on »
Web 2.0 by Dr. Kevin Web 2.0 is a term that I only recently learned from my friend and blogger maven, Steve Hargadon, who was the one who originally setup our website. The existance of a term such as Web 2.0 presumes the existence of a term such as Web 1.0. However, World War I wasn't referred to as such until after World War II. Originally it was just "The Great ... Read on »
October 15, 2009 - Day 178 by dezwit If you don't have Amyloidosis, thank your God everyday. If you do have it, you know what I am talking about. Sorry, that's it for today, a bad one at best. Will write tomorrow. Goodnight Read on »
October 29, 2009 - Day 192 by dezwit I'm a little tired today, but feel as well as can be expected for someone with amyloidsosis. One week ago I was all beat up, but today is not too bad. Hopefully this trend will continue as we move along through my treatment. I received a letter today from a gentleman who was recently diagnosed with Primary Amyloidosis with cardiac and GI involvem ... Read on »