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Amelia Facial Dysmorphism - Articles

Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted Mon 06 Feb 2012 3:01pm I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the R.A.R.E. Project and  Global Genes Project , leading patient advocacy organizations representing the rare disease community, issued the RARE List™ , a stunning 65 page ... Read on »
Eggscellent B&B Breakfast and Amelia River Cruise {Amelia Island, FL} by thechiclife Posted Wed 12 Jun 2013 7:41am Welcome to our new blog friends from Vitamix! I’m currently blogging about my recent vacation to Florida, but I have some new recipes coming soon! In the meantime, here we go…just a couple posts left! If you came here for more smoothie or Green Monster recipes, check out these: Green Monster Muffins (apply that smoothie conce ... Read on »
Amelia’s Birth Story by LBontherun Posted Wed 08 Jan 2014 1:25pm I loved reading birth stories while I was pregnant. Not only because I felt like I needed to prepare myself for what was to come, but also because it was fun to hear about how other babies came into the world. Even the “horror” stories. Because no matter what, whether the woman’s labor was easy and short or long and difficult, there was always ... Read on »
Amazing Amelia...IN PERSON! by Jodi Cutler Del Dottore Patient ExpertHealth Maven Posted Fri 10 Jul 2009 10:11pm I have known Debbie since high school and a mutual friend told me about her blog about a year ago. I have been following Amazing Amelia's story since then. Finally, after about fourteen years, since I last saw Debbie, I got to meet them in person. Amelia has cerebral palsy and Debbie's blog is a wealth of information. Reading the blog and li ... Read on »
Amelia, Desa Parkcity by suzette Patient Expert Posted Thu 11 Sep 2008 3:51pm Yesterday and today are the launch dates for the latest project of the Desa Parkcity — Amelia. My family went there to check out. Whew! The cheapest lot costs RM795k, for a double storey link. My friends were there as well, and we talked about the prices of these properties. A few years ago, to buy a 500k unit, we have not enough to pa ... Read on »
Blogger Interview Amelia Burton by Mark .. Patient Expert Posted Mon 07 Jul 2008 7:04pm Hi all I have a real treat today as I managed to get a interview, with a gym owner and personal trainer, whom I got to know through blog catalog. Her name isAmelia Burtonfrom Oz Australia Hi Amelia and welcome to my blog and thanks for allowing me to interview yourself. Mark Would you like to introduce yourself and give the re ... Read on »
Amelia's moving right along!! by Amelia's Daddy Patient Expert Posted Tue 12 Aug 2008 4:09pm Hi everyone, I hope where ever you live , you are enjoying your summer. Amelia 's weekly therapy sessions have started again this week, and today was her first visit in about a month and a half. As usual I don't get to be there , but Mom does her very best to keep me in the loop . As usual Amelia was full of fire today!! ... Read on »
Amelia's speech development ! by Amelia's Daddy Patient Expert Posted Sat 23 Aug 2008 10:31pm Hello everyone , Hope fully you all had a great weekend. Amelia has started to talk!!!! Yes thats right ...2 months after her activation, she has started to verbalize herself. " uh oh" " Thank you" and " Dirty" are now another apart of Amelia's verbal life !! We can not begin to tell you all how happy we all are in ... Read on »
A letter to Amelia from Daddy by Amelia's Daddy Patient Expert Posted Sun 24 Aug 2008 1:33pm My dear Lemon Drop, I want you to know how very proud I am of you, You have done the most amazing things in your life , that all I can do sometimes is lie awake at night wondering how you figure it all out. Like most people I have lived my life with a good ability to hear whats going on around me, You have lived most of your lif ... Read on »
My colleage bought Amelia, Desa Parkcity by suzette Patient Expert Posted Tue 26 Aug 2008 12:30pm I read from Desa Parkcity’s homepage a couple of months ago before it went on ‘construction’ again, that some people queued up or stayed overnight at the developers office, for the official launch of Amelia, Desa Parkcity . In the forum, many thought it was a scam, news created by the developer trying to make Amelia project sounds like ... Read on »